Progesterone Has Really Helped Me!! - Endometriosis UK

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Progesterone Has Really Helped Me!!

MandaBunny profile image
4 Replies

Hi ladies 😊

I felt compelled to share with you, my experience with Utrogestan.

Following a VERY long journey.. just like we have all tolerated on our individual timelines

Cut a long story short; I had excision surgery for crippling endometriosis all over my abdominal wall last June.

The surgeon was excellent and a BSGE specialist. My pain was instantly subdued and for 5 months of my life, I began to live again.

However, the pain returned and I sunk into a deep depression.. felt like my life was over all over again.

I asked my GP to refer me back to gyneas. This was back in November.

Have heard nothing. And it's understandable given Covid.

So I kinda took matters into my own hands and conducted some research.

Anyway, will cut to the chase. I had oral Progesterone and topical oestrogen left over from when I had the awful Prostap.

So I began taking the Progesterone capsules each night. What did I have to lose? I I'd no support other than painkillers from my GP, which I hated taking.

2 months later.. I feel amazing. I have mini flare ups.. but the pain is pretty much gone.

I hope and pray 🙏 that this may be a way out of this torture for me.. I do wonder whether I would need a little oestrogen to balance out, but I'm scared to in case it fuels the evil endometriosis.

I just HAD to share this with you gals in the hope it will help you too. 🙏

I'm 45 BTW, so maybe I'm perimenopausal? Something to near in mind.

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MandaBunny
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Brambledoggy profile image
Brambledoggy

Please can you read my profile? I’m 51, symptoms now all menopausey as I’ve done 12 months without a period but I am so confused about oestrogen and it boosting endometriosis. (Going in for tests next week as I’ve had a tiny bout of abnormal bleeding which hospital thought was one last ditch at a period) Am scared of body identical hormones but wonder if I’m missing out as have lots of menopause symptoms now. How old are you? I have joint pain, weight gain, hair loss, can’t hold in pee sometimes (yes, sorry) feel resigned to being pain free but blimey HRT so confusing. Thought going au natural would be best because when I read the data the evidence is really unclear about links to uterine cancers, HRT and endo. Any advice welcome. Thanks.

Jenn2022 profile image
Jenn2022 in reply to Brambledoggy

Hi, what I was told by my consultants was that the amount of estrogen in hrt is absolutely tiny compared to the amount of oestrogen produced by your ovaries. So if you're menopausal (naturally or medically or surgically) taking hrt is ok.

That being said, I've also seen data showing that the risk of endo returning is higher (*but not high*) if you're taking estrogen only hrt. The risk is lower if you're on combined hrt, but even menopausal women who are taking no hrt at all can get endo returning. Basically we can't win.

If your menopausal symptoms are making you miserable and causing you pain I would suggest taking a really low dose and see how you get on. I'd be cautious about the "body identical" stuff though as it's not evaluated or monitored in the same way that normal medicines are and there is very little data about it.

Brambledoggy profile image
Brambledoggy in reply to Jenn2022

Yes, it’s almost like you’ve read my mind, I agree with all you say, as I type I’m in bed listening to Dr Louise Newson, podcast 88 and how safe hrt is for women with a history of endo, and I might add I also have fibroids! I think the fact that I’m no longer climbing walls with pain or finding my hair torn out is clouding my vision, i.e that I’m so grateful to be rid of pain, anything else is a bonus! Appreciate your reply. Nina

Serendipitious profile image
Serendipitious

So pleased to hear this. I’m a similar age. How do you get your GP to prescribe? How can we convince them? Mine is too scared of prescribing any form of HRT even though my periods have randomly stopped, for the second time. Must be making the Endo worse.

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