Has surgery not worked for me?: Good... - Endometriosis UK

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Has surgery not worked for me?

princessk09 profile image
16 Replies

Good evening everyone,

I had my lap 2 months ago and my pains have come back again. I have the same dull heavy ache everyday in my ovary area and sharp pains.

I'm late for my period which is due this week so I'm not looking forward to that as I start university next week so don't want my period then

Plus I’ve had the worse break out of spots on my chin 😫

Has surgery not helped or will it take longer until I see changes. I really don't want this pain anymore and wish I could have everything removed

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16 Replies
tinkerbell971 profile image
tinkerbell971

My pain come back a month after I had my lap I was a month pain free. Still in agony a year later and it’s worse than it was before the lap. I went back to gynae and they said it wouldn’t have grown back so quick and refused to do anything else with me but I’ve read online it can come back quickly especially when your not taking anything like the pill or coil etc xx

princessk09 profile image
princessk09 in reply to tinkerbell971

My doctor won’t let me start treatment as my gynae may have a plan ready for when I see him in October. It’s another month away!

I’m worried it may be growing back or the cysts are coming back xx

tinkerbell971 profile image
tinkerbell971 in reply to princessk09

It could be but I doubt your gynae will operate again so quickly xx

princessk09 profile image
princessk09 in reply to tinkerbell971

I’ll have to mention it to him at the follow up. I was thinking of going doctors but I doubt they will do anything xx

tinkerbell971 profile image
tinkerbell971 in reply to princessk09

Nope they probably wouldn’t do anything until you have seen him. They might suggest going on the pill or something until but you’ve said previously you don’t like it. I come to a wits end with my pain and gynae refused to do anything else with me at this stage so he referred me to the endo pain doctor. I recommended asking to see the one in your area because mine is AMAZING!! From the second I walked into the room I knew it was going to go good and he just listened and understood me and understood the fact that it’s not normal for a 20 year old girl to have chronic pelvic pain. After an examination he found I’ve got something called osteitis pubis which is a sports injury but can happen after gynae surgery or trauma. He thinks this could be causing some of my pain so I’m having injections into the groin bone and if that doesn’t work he’s referring me to women’s health physio and he told me he will find something that works for me. If you continue to get the pain definitely ask to be referred when you go back next month xx

princessk09 profile image
princessk09 in reply to tinkerbell971

I might look into that. I’m pretty much on my own dealing with this as I can’t tell my parents since they won’t believe me considering I had surgery 2 months ago. xx

tinkerbell971 profile image
tinkerbell971 in reply to princessk09

I would. He also looks into your mental health and stuff to see if your suffering with it on the inside. They will probably help you in ways to get around your parents as it must be hard xx

princessk09 profile image
princessk09 in reply to tinkerbell971

I’m a bloody mess emotionally xx

Vicmcvicster profile image
Vicmcvicster

I had surgery 8 weeks ago and was great for the first 6 weeks then started getting worse pain than before the surgery. And nausea and vomiting with it. Which I could really do without. Been struggling to eat and function with the pain. Had to go a&e in the end and ended up in hospital.

I've been given prostrap injections which I was a bit hesitant about tbh because of the mixed bag of reviews, but they basically said if they keep going in and cutting out the endo everytime it flares up like this its just going to create more problems with scar tissue and adhesions.

So seeing my surgeon in month to see how the prostrap has worked and what he thinks to do. In the mean time ended up taking oxycodone for the pain that's how severe its been. Didn't know it could be this bad for so long. It's been three weeks since this episode stated :/

They also said that for some women the surgery doesn't work first time and it can come back worse. Guess that's us?!?

princessk09 profile image
princessk09 in reply to Vicmcvicster

It wouldn’t surprise me if it’s returned haha, I’m a really unlucky person 😂

I’m going to treat Depo-provera hopefully as I’ve tried so many other forms of contraception and nothing has helped. But I can’t get treated till my follow up on the 19th October.

I was up all night with period pains and I’m losing a lot of blood (sorry tmi). At this point, I kinda wish I could just have everything removed, I don’t want a life of struggling with pain and constant surgeries xxx

Vicmcvicster profile image
Vicmcvicster in reply to princessk09

Ha I know right I thought the same if it's going to happen to probably will 😂🤦🏼‍♀️

Yeah if tried the mirena and it didn't work so they suggested this prostrap which is injection a bit like the depo but just blocks estrogen.

Is this your first period after the surgery? .cause mine was a nightmare but other than that I was ok, and apparently it's a ’thing’ that the first few are terrible?

princessk09 profile image
princessk09 in reply to Vicmcvicster

It’s my second period, I may still be healing but the dull heavy ache I used to have has come back. Which was a result of having a large cyst on my ovary.

Vicmcvicster profile image
Vicmcvicster in reply to princessk09

Ah that's not good yeah my pain got worse before my second period started and was in the same place as last time but much worse. So bloody frustrating isn't it. :/

princessk09 profile image
princessk09 in reply to Vicmcvicster

It’s so annoying and I’ve had a massive breakout of spots on my chin 😫 I start uni next week so need them gone haha

ElaineKC profile image
ElaineKC

I had a similar experience.....the specific pain where there was a cyst on my Fallopian tube was gone but the general pelvic pain and worsening periods came within 10 weeks. I had a Mirena IUD put in and it has helped a lot. Don’t go by others reviews. Try different options until you find something that helps.

princessk09 profile image
princessk09 in reply to ElaineKC

Yeah, this is my second period since surgery and it hurts to sit down atm the pain is so bad

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