Girls I’m at my wits end, I’ve had surgery after surgery, diagnosed at 22 and now 33, my endo has been relentless, excruciating and taken so much from me. I was incredibly lucky to get pregnant after having ivf after surgery in 2018 and my pregnancy was a utter dream, I had zero pain - it’s was amazing!
Fast forward to now and I’m in the exact same place I was before, my pain has always been all month long, it starts at the end of my period and intensifies up to ovulation, which is utterly horrendous after ovulation it gears up again until my period, which is all consuming and then the whole thing repeats. I’ve tried every clinical and alternative treatment imaginable, from the coil, temporary menopause, surgeries acupuncture, Chinese medicines, supplements, no sugars, no dioxins, no estrogenic food etc etc etc to no avail. My endometriosis returns so quickly and is has always been deep infiltrating so much so that my left ovary permanent hangs next to my bowel and eventually gets stuck, everything time they release it, it sticks again. All my surgeries have been at specialist endometriosis centres I should add.
I’d love to have another child but completely aware that may not happen, and even if it did I worry about how I would manage as I’m living off pain killers at the minute. I know the myths about a hysterectomy being a cure for endometriosis but I just want to know if it’s worked for anyone? Surely there has to be some hope? I really feel like it’s my only option as I can’t function like this anymore.