Girls I’m at my wits end, I’ve had surgery after surgery, diagnosed at 22 and now 33, my endo has been relentless, excruciating and taken so much from me. I was incredibly lucky to get pregnant after having ivf after surgery in 2018 and my pregnancy was a utter dream, I had zero pain - it’s was amazing!
Fast forward to now and I’m in the exact same place I was before, my pain has always been all month long, it starts at the end of my period and intensifies up to ovulation, which is utterly horrendous after ovulation it gears up again until my period, which is all consuming and then the whole thing repeats. I’ve tried every clinical and alternative treatment imaginable, from the coil, temporary menopause, surgeries acupuncture, Chinese medicines, supplements, no sugars, no dioxins, no estrogenic food etc etc etc to no avail. My endometriosis returns so quickly and is has always been deep infiltrating so much so that my left ovary permanent hangs next to my bowel and eventually gets stuck, everything time they release it, it sticks again. All my surgeries have been at specialist endometriosis centres I should add.
I’d love to have another child but completely aware that may not happen, and even if it did I worry about how I would manage as I’m living off pain killers at the minute. I know the myths about a hysterectomy being a cure for endometriosis but I just want to know if it’s worked for anyone? Surely there has to be some hope? I really feel like it’s my only option as I can’t function like this anymore.
others are right, its great to make sure all the visible endo is excised at the same time. The one thing I would say is if you are heading down this road (I was 34) that you ask to be under the care of a specialist menopause consultant if you decide to have your ovaries taken too and you look at the British Menopause Society guidance for HRT in women with severe endo below the age of 40, arm yourself with this and discuss with your health team. I went with everything being taken because my endo was aggressive and my pain was debilitating during ovulation and my period, I didn't get the right level of care needed in the respects of HRT post op and this is partly due to lack of education within the medical profession for surgical induced menopause and endo - I am still on this journey now, but that aside life does get better, in fact its amazing and a joy to be relatively pain free! Everyone is going to have a different story, don't let that overwhelm you, listen to your intuition, the fact that you are already thinking about it is a major step forward. I hope that this helps in some way 
I asked for a hysterectomy and was told no - 29 at the time. But my consultant said he would remove one of my ovaries, I had it done a few months ago and I’ve never felt better! X