Pain and swelling in shoulders and neck during ovulation

[Melon365]

This has been happening for a while now but in the last couple of cycles it has become unbearable. As well as the back and pelvic and leg pain during ovulation I get pain in my left shoulder, it radiates down my arms and up into my neck. Sometimes it feels like a weird burning, other times an unpleasent tingling. The sweeling gets so bad I cant wear a bra because it hurts so much.

I had always thought it was endo in my diaphram but I had a specialist ultasound last week which suggests the endo I have isn't very deep. Does this mean thoracic endo is out of the question? Anyone else have similar symptoms?

[Vps1980]

I get similar symptoms but in my right shoulder also chest pain and shortness of breath, I haven’t been diagnosed yet, pretty sure ultrasound wouldn’t show it though xx

[Melon365 in reply to Vps1980]

Yeah they explained that you cant see superficial endometriosis in the ultrsound but I doee that mean this pain isn't endo? I just have so many questions

[Vps1980 in reply to Melon365]

Not at all, ask for an mri xx

[Ecorc]

Hey, just seen this so sorry for the slow reply. I don’t have deep infiltrating endo either but they found it on my diaphragm. I got prickly/ tingling on my skin too which I once thought was shingles but it’s linked to the diaphragm having such a big nerve in it. Did you get diagnosed in the end?

[Melon365 in reply to Ecorc]

Thanks Ecorc, Its good to hear that you don't have to have deep endo to get it.

I havent had a diagnosis yet. I told my GP and they dismissed that it was period related (I expected this) but had tests and an x-ray that all came back clear.

I saw a physio last week and they said that there is welling and pain in my peck muscles and my thoracic muscles so I have been given excersises to strengthen them.

I have an appointment with an endo surgeon in the next couole of weeks so will tell them that I want to be checked for thoracic endo. Even if the gp doesnt believe me I am pretty sure it is endo.

X

[Ecorc]

Unfortunately xrays and ct scans aren't sensitive enough to spot endo so they wouldn't have show anything. Laparoscopy is the only way to detect it. Mine was easier to diagnose because I kept getting a monthly pneumothorax which made it pretty obvious! They only started after I had my diagnostic lap for pelvic endo though and the surgeon thought that the CO2 they pump into your abdomen for the surgery might have dislodged the position of my liver from where it happily nestles just under the diaphragm. The endo could have been on my diaphragm for a long time before the op but that then the op then allowed air to get behind the liver through the endo holes (fenestrations) in my diaphragm which now causes the lung collapses. As usual there's literally no research out there for this so all speculative, but it's just weird it all only started after the lap. If you can tolerate the symptoms then I would proceed with any surgery with caution if you don't absolutely need it x