Examination

[HolsBamboozledwomb]

I feel like I'm writing so many questions, but it's so hard to get answers about Endo!

I have had the external examination where they insert finger and press on abdomen. While it is extremely tender and painful, They said they can't feel anything there, but my symptoms suggest deep Endo. Has anyone with Endo had this happen? Where nothing is felt in examination but then there is deep Endo found?

[Tillyfloss]

Hi. Hope you are doing ok. I had normal ct and mri scans but when I had surgery they discovered stage 4 deep infiltrated endometriosis and a full frozen pelvis as well as the chocolate cysts that were the only things that had shown on the scans. The specialist was amazing but he was baffled by my scans being normal. Hope you can get some help. Do you have a pain plan in place? X

[HolsBamboozledwomb in reply to Tillyfloss]

Thank you for getting back to me, I have only had the internal/external pressure scan and an internal and external ultrasound, and I have a small cyst on my left ovary and I have +cells in my swabs and urine samples, they have no idea why though. I have a kind of pain management plan, I take gabapentin, cocodamol and naproxen, morphine in flare ups which happen 2 to 3 times a month and the rest of the time I just feel like I've been kicked in by Mike Tyson lol. Did you find when it was removed you got rid of some of the pain? Xx

[Perla19]

Hey yea, that happens all the time. The only way way to actually diagnose endometriosis is through a laparoscopy - surgery where they make a couple of tiny cuts in your bikini area and put a small camera on the end of a tube in and actually take a proper look inside you. If your symptoms haven’t been helped by the usual painkillers and/or hormonal treatments, and it sounds to the doctors like you might have endo, then a laparoscopy might be the next step. See what they say, or ask them about it.Wishing you all the best x

[HolsBamboozledwomb in reply to Perla19]

Thank you 😊 they have referred me for laparoscopy, I am hopefully going to have this done in May. I just sometimes still feel a little silly, mainly because I get alot of comments from people saying are you a hypercondriac and surely it's not painful enough for morphine, when actually morphine only takes the edge off during a flare up and all the pain medication I am on and being on the pill, it has helped a little but I still spend most of my time in pain 😵‍💫 it's very comforting that that this happens alot. Xx

[kittykins7 in reply to HolsBamboozledwomb]

Hi there,

Don't feel silly asking questions, or like your a hypercondriac......only someone who has no idea what it's like and who doesn't understand would think that, and luckily none of us on here fall into that category, so you ask away on any questions you have 😀 x

[HolsBamboozledwomb in reply to kittykins7]

Thank you, it's so easy to question myself, and I have been made to feel for so many years that I'm just over reacting to pain and I should just get on with it. I hope In time the stigma disappears about Endo and adeno because it sucks lol. I'm so glad I found this space of people who are just like me ☺️. Xx

[kittykins7 in reply to HolsBamboozledwomb]

I totally agree. We're not alone here. Xxx

[Dee_EndoUK Moderator Endometriosis UK]

Hi HolsBamboozledwomb

It's good to hear that you've been referred for a laparoscopy - it really is the gold standard for diagnosing endometriosis and can also be used to treat endometriosis.

We have a really great information sheet on our website that highlights what happens during a laparoscopy and some of the things you may experience after surgery.

It can be found at endometriosis.uk.org/your-l...

The main thing to remember is that you are entitled to ask questions of the doctors who will be performing the surgery to ensure you are comfortable and try to remember that everyone's experience and recovery times are different and that you should take your time and take it easy when recovering.

Good luck with your surgery and remember there's lots of information on our website about support services.

[lucikam]

Did they check pelvic inflammatory disease?

[HolsBamboozledwomb]

I had been diagnosed 6 times, just because of sensitivity, but the gynae actually thinks there had never been PID and only Endo.