Diagnosis from scan/ cyst removal - Endometriosis UK

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Diagnosis from scan/ cyst removal

Candles5 profile image
8 Replies

Hello

I am aware that the general rule is diagnosis by laproscopy however I have been diagnosed with endometriosis due to lots of cysts on my ovaries and the consultant and sonographers being able to see the endometrial tissue- I know this is uncommon to get a diagnosis in this way but I wondered if anyone else had?

I have been in significant pain and sickness so my cyst removal surgery has been moved to urgent so should be in the next couple of weeks or so I just wanted to hear peoples stories of having endo cyst removed.

Thanks 😀

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Candles5 profile image
Candles5
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8 Replies
EndoSuckss profile image
EndoSuckss

I had an endometrioma removed during my first lap - it burst during removal and my right ovary is now adheared to the pelvic wall!

But I think that's not normal, so please don't worry! My recovery was good after the lap ❤️

Candles5 profile image
Candles5 in reply to EndoSuckss

Okay thanks! How are you doing now?

EndoSuckss profile image
EndoSuckss in reply to Candles5

It was 3 years ago now, and the ovary is still stuck (as confirmed by my most recent lap a month ago!) but doesn't really cause me any additional problems!

Lindle profile image
Lindle

The finding of endometriomas on a scan is a confirmed diagnosis of endo (ovarian). Just be aware that this is often an indicator of deep endo elsewhere, usually rectovaginal, so if you have symptoms of that it would be wise to have another scan by an expert in ultrasound detection of deep endo.

Candles5 profile image
Candles5 in reply to Lindle

Do you have endometrinomas? Okay I can mention that to the surgeons once I see them for surgery thanks

Lindle profile image
Lindle

I no longer have ovaries and never had any on them. But I developed a huge complex one that was partly solid and partly cystic in my pouch of Douglas after a hysterectomy and ovary removal. But that grew under HRT and is rare.

Candles5 profile image
Candles5 in reply to Lindle

Ah im sorry to hear that. Sounds a lot

Lindle profile image
Lindle in reply to Candles5

I'm fine now thanks. x

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