Going for a second opinion?

[Bobo27]

So it’s been a while since I’ve been on here but since then I had a laparoscopy that was clear apparently. They originally did not want to put me in for a Lap but after months of E.R visits and asking for pain relief after the coil insertion they found a 5cm cyst on my ovary. They told me it was a the coil settling but I knew something was wrong.

I’ve had painful/heavy periods for years. I’ve been given diagnosis like Anemia, suspected interstitial cystitis and IBS. This pain would keep me off at least 4 days a month from school or work but apparently isn’t endometriosis?

When I went for the lap I talked to my auntie who has endometriosis and she told me what to expect. But when I woke up from surgery the doctor very quickly told me it was clear and that my body “just isn’t wired properly”. I only had an incision in my belly button and the area where the cyst was. My stomach wasn’t bloated and I had no bruising or anything that anyone else is describing on here.

I’m going to a fertility clinic to try and get a second opinion but I feel like I’m stupid and I should just listen to the doctors but I can’t just live with not knowing what is wrong with me. I have the coil and combined pill that I’ve been taking for 4 years now. The pain has significantly reduced but I’m terrified of ever having to come off them and what pain will be there. I developed bladder issues and IBS over them years as well as back pain. Am I being stupid asking again? I feel like i develop a new symptom every year at this point and I’m losing my mind about it.

Please if anyone has had a similar experience let me know x

[Moon_maiden]

Definitely get a second opinion and don’t feel you don’t deserve good treatment and a proper diagnosis, you do 🙂 Stupid consultant for making ridiculous comments, you’d think they’d know better.

Are you in the UK or US? It’s only because you mention ER rather than A&E. Maybe you could see the gynae your aunt saw.

[Bobo27 in reply to Moon_maiden]

Hi thank you x no I know I deserve good treatment it’s just during this you get frustrated you know? I’m actually from Ireland haha, we are not the best on women’s health as is so 😂 I went to the gyne my aunt saw and he was the one I talked to but he dismissed me I think because of my age. Thank you for the kind reply, I think sometimes we need to hear it from each other, especially when your doubting yourself so much

[Moon_maiden in reply to Bobo27]

Second opinion is a good idea, include what you’ve mentioned here.I think I didn’t get the right endo treatment due to age but other end of the scale. I had hysterectomy last year with nothing mentioned about bowel or bladder on the hospital notes, found out no MDT, this was BSGE. I see a gynae from a different centre next week. I’m still getting pain in the abdomen/pelvic area. I pushed GP for this.

Let us know how you get on 🙂 consultant your aunt saw should know it can run in families as well.

[Afrohair]

Your first lap just sounds like a diagnosis lap they haven't had a good look round I find these Laps pointless as all they say is it's all clear or confirm what you already know which is that you had a cyst they don't have to do more incisions my mums had one with only one incision it's not all in your head you definitely have endo if I was you I'd do your own research and make a plan of how you will cope with it mentally and emotionally there is no cure for endo and you have almost exhausted your options you could ask for a second opinion which may in turn become a second surgery or find ways to manage it through diet etc know that you are not alone here I'm not on this page much anymore but still welcome personal messages for advice and I can get back to you for support all the best x

[Bobo27 in reply to Afrohair]

Thank you so much for the reply x yes I have been doing my own research it’s just getting that clarification is what I need right now. They are setting up an endo support clinic for the first time in Ireland and I want to be a part of it to see their treatments, just anything to help really. Thank you again it’s so nice to have people understand, you don’t feel as crazy anymore haha 💕