Scrap yesterday’s happy post, I lied!

[Heloo85]

So, I felt like I’d got better yesterday! That a nerve that has been trapped has been released! That is now the least of my worries! So since sepsis, and Drs inactions, I have been taking it easy! I have battled rashes and cold sores but eventually managed to gain some weight!

Well, it would appear I’m still not well! 😡! And Drs are still doing nothing, 4 months on 😡! So I thought I felt fine yesterday, a great time to go for a walk, rebuild some fitness ready for this surgery! Wahoo, the worlds great! Well, i went for a slow stroll through Skipton woods, not far from my house! Didn’t push it! Was outpaced by pensioners 🤣. So I got home and I was exhausted! My eyes looked like pee holes in the snow! I could barely keep them open! But, I could barely keep them closed either because I felt like I’d been hit by a steam roller! Omg, the pain was so bad! Like could cry, so bad! I took my 1 paracetamol, that did jack and went to bed! Well, I didn’t sleep! I couldn’t lie left because it felt like my bowel was going to tear! But I couldn’t lie right because it felt like my back was going to tear! I’m still in huge amounts of pain! HUGE!

How are we expected to live like this? 😡

[Hidden]

Hi Heloo85,No one should be expected to live with pain like that. You're a human being, and you deserve help.

May I suggest calling NHS 24 if it's out of hours? (Call 111)

I completely understand that you've struggled with this for a long time.

The advice I was given is that if regular at home pain killers aren't working, ask for help (eg NHS 111, or A&E if necessary).

[Heloo85 in reply to Hidden]

I have messaged my GP! I’m limited on what pain relief I can have unfortunately, which as it stands is actually just paracetamol! It’s more on waiting on my consultant to figure it out! Atm I want to avoid a colostomy if I can! But I’m scared I may have an underlying infection!

I think I’m going to have to just battle on for now! 😭 xx

[PurpleSynesthesia]

Morning beautiful,

So sorry to hear what you're going through. Wish I could give you a (gentle) hug!

What I say may or may not be helpful or relevant but as women, we have to so our own figuring out, don't we? Sorry it's long 😑.

So, roughly 15 years ago, along with the cramping & other menstrual-related issues, I was experiencing other issues that I didn't know were related or not & overlapped symptom wise. Some of the side effects were inability to eat much because of frequent nausea, very sharp pains below my left ribcage, extreme weakness & fatigue (almost passed out just walking home from college), sudden yellowing of my skin & eyes that would come & go randomly, extreme bowel pains straight after eating /drinking anything, going between watery diarrhoea & constipation - regardless of what I'd eaten. All this had been getting progressively worse for about 6 years ...

...I was wrongly informed that I had IBS & a stomach ulcer (no investigations or tests, just dismissive GP). He told me to chug down Gaviscon from the bottle & also drink milk as often as I could...

...this combination of "treatments" made me feel 100 times worse and everything amplified. I informed the doctor that I believed dairy products were causing my symptoms & was told that it was impossible because I'd have skin rashes, that dairy was vital for a young girl of my age. I was basically told that I was probably stressed with my college work (I wasn't, although this illness was turning into a vicious cycle), that I should persist with the "treatment," & take deep breaths.

After a few months of feeling like death & not digesting any of the Christmas dinner I'd forced down, I decided to cut out dairy products completely.

Within 2 weeks, I felt so, so much better than I had in years (doctors still didn't listen) and stayed off any trace of dairy for 2 whole years. My sporadic bowel habits stopped, the extreme fatigue & weakness eased right up, I never had yellow skin & eyes again. At that point, I decided to reintroduce dairy, minus the lactose, in small amounts.

I did so & had no I'll effects. Fab!

I added in a small amount of lactose & within 4 hours I was so nauseated & bowels were cramping like they were trying to squeeze out a wet flannel. Painkillers wouldn't touch it & that was me done for the day.

I've been lactose free ever since & have never looked back.

I also discovered that sweeteners aspartame & acesulfame K both cause me to have migraines, so avoid them too.

As I said, I don't know if this will help or not but I wanted to show how extreme a food intolerance can be when it's ignored for so long.

Wishing you all the best, keep us posted xx