Gynaecology issues : I am so exhausted... - Endometriosis UK

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Gynaecology issues

Nm1993 profile image
3 Replies

I am so exhausted, mentally and physically at this point.

I have constant spotting, it has progressively gotten worse over the past few years. Had a cervical ectropion treated last year and a Transvaginal scan, which came back clear, Spotting lightened slightly after treatment, but has progressively gotten worse. To the point where I'm maybe blood free for 10 days a month. I am sick of going to the doctors, had a ca125 blood test which is clear, antibodies tests for hashimotos which I assume is clear also. I have a subclinical thyroid. T levels at 4? I don't even know what that means. I've been given levothyroxine in the hopes it stops the bleeding. I pretty much said to my GP I want referred to gynae. That's the end of discussion. I am half convinced something has been missed and I have some sort of gynaecological cancer.

I feel generally uncomfortable, occasional thigh pain, pelvic and lower back pain. Bowel issues. This has been ongoing for years now. While, it isn't the worst pain in the world. A barely there niggle. I keep thinking of the worst reasons. I've always, from I was young, had a niggly pain in my stomach and I cant help but over think it now and assume it's the worst. So stressful. I just want someone to take it seriously, I shouldn't be bleeding this month and I really feel dismissed. GP pretty much said, I'm not a priority, I'm only 27 and if I'm worried I should go private 😩😭

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Nm1993
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MissPickles profile image
MissPickles

Try not to think the worst - low thyroid is linked to spotting and is easily corrected if that's the case. If the spotting and pain continues once you have been on levothyroxine for a while then I would perhaps try to see a different GP. it's amazing the different responses you can get from different people on different days :-) If you havent had an ultrasound then that's likely to be their first port of call to check for cysts which may be causing the pain. Otherwise you have the right to ask for a referral to gynae

Yes there are an incredible amount of people waiting for healthcare right now, so if you have private insurance then I would definitely go that route, Private healthcare are generally happy to do "peace of mind" scans, whereas the NHS just cant do that . I thought it sounded a bit patronising the first time I was offered a "peace of mind" scan but the effects of anxiety shouldn't be underestimated, it can be crippling. I didnt have my own insurance but my partner was able to add me to his work policy. But if that's not an option for you I would definitely persevere with a different GP x

Nm1993 profile image
Nm1993 in reply to MissPickles

Hey, thanks for the reply.I have been on levothyroxine for near a month or so now, and haven't noticed any difference yet. I had a transvaginal scan last year, and nothing was picked up. So, that's all I am gleaning to at the moment to give me some peace of mind. I suffer from health anxiety, so as you can imagine having a physical, visible symptoms is wreaking havoc with my mental health. Some days are better than others, but it constantly rings in the back of my mind that it could be something more worrisome. Half the time, I don't even know how I feel. Like, what is stress when it's your baseline emotion. Just wish I had answers. Just so mentally drained from it all. I can't do much but cry.

MissPickles profile image
MissPickles in reply to Nm1993

I agree the anxiety can often be worse than the condition itself. It's worth trying to speak to a different GP, you may get someone more sympathetic. The first one I spoke to referred me for ultrasound straight away but then wasnt interested in anything after that. The second GP (male) actually took it far more seriously, although I did end up asking him for a private referral as the wait times are obviously super long at the moment due to covid. 2 MRIs in a lovely modern unit came to £410 and the consult was £130. Both booked within a matter of days

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