Gynaecology Referral

[Lucyloo02]

Feel like I’m just going round in circles and it’s really starting to affect my mental health now too. I just want nothing more then to be able to get through one day without been in so much pain. I had the coil fitted 4 weeks ago and things have just got worse since. It’s really affecting my life and lately there hasn’t been a day where I haven’t cried because I just can’t cope with it anymore. I’m currently on Tramadol and Mefenamic acid aswell as taking paracetamol on top. I use my hot water bottle quiet a lot and I’ve taken as many hot baths as I can. Gynaecology have said they won’t see me again until I’ve had the coil in at least 6 months 😖

This was the first line of treatment we chose, I haven’t had a diagnostic lap as of yet because apparently I’m still too young. I’ve been bleeding since I’ve had it fitted too.

The thing is can gynaecology really refuse to see me if it hasn’t been 6 months?? I’m really sick off been told your too young for an operation we don’t really want to be cutting you open if we don’t have to 🤔 I’m honestly not sure how much longer I can cope with the pain, it’s starting to take an affect on my work now too and I’ve already had two weeks off cause I can’t physically move out of bed. I’ve asked for another referral to gynaecology and under the current situation my GP said it may take awhile but she also doesn’t think they will see me.

What can I do if they do refuse to see me???

[Bubble_by]

Would most definitely find another Doctor when they tell you 'you're too young for a laparoscopy'. I used to get fobbed off with this too till I found another doctor who actually listened and gave me my first laparoscopy (after 5-6 years of being ignored by my GP 🙄)

I understand things like refferals are tricky given the current situation but I don't think they can refuse to see you? If you have pain they have to listen.

Perhaps in the meantime you could seek a second opinion. I know it's shitty having to repeat yourself, but someone else could suggest something the others haven't.

I don't know if you have one already but I find a heat mat works wonders for me when I have pain.

I completely understand about endo affecting your mental health - it certainly has with me. But don't forget we as a community are here to support you through this ❣️

Hope you feel better soon 🤞

[Lucyloo02]

It’s taken me 3 years to get referred to gynaecology the first time because my GP said I was too young. I definitely do need a second opinion cause I feel like I’m just been fobbed off. I haven’t got a heat mat but I have ordered one so hoping it arrives soon.

I’m just sick off crying all the time because I’m in so much pain and I don’t know what else to do 😔

[Moon_maiden]

Sorry you’re having a very tough time. I’d definitely look at a second opinion. I’m not sure how old you are, it should also be considered on symptoms, in my opinion anyway. Have they done anything like MRI to check for other things or is it definitely endo.

I don’t know anything about the coil, I wouldn’t know if any of your pain relates to that, have you asked the GP?

I hope you manage to get a new referral, maybe there’s a different hospital you can go.

[Linley]

So sorry you are in such pain. Your GP has a duty of care to try and keep you pain free. In these difficult times he/she should still be offering a service, probably phone consultations. Write down all the questions you wish to ask, how you feel especially after having the coil fitted.

Give it a go.

Sending you a big hug and keep safe

[Emsy]

Hi really sorry you're going through this

[Emsy in reply to Emsy]

Sorry just learning how to use the Internet! I keep losing this box, you can refuse the coil. Women aren't supposed to be fitted with one until you've already had a baby as the cervix isn't big enough. I take progesterone only pill straight through all the time and can take it until you're 50. They can also give you a pill as well as coil. There are some yoga positions to stretch your pelvis and take pressure off inside you. Good luck xx

[Lucyloo02 in reply to Emsy]

I already have the coil fitted.....I tried the pill from 15 to 17 and it didn’t work at all if anything it made me worse.

[Emsy in reply to Lucyloo02]

Hi sorry for you being in pain, I think they can give you the hormone patch at the same time or if the coil doesn't work another alternative? Sorry you're going through this, try mefanamic acid to reduce blood flow and if you are heavy they should check your iron /ferritin /vitamin d levels too. Take care xx

[Lucyloo02 in reply to Emsy]

I’ve been on mefenamic acid for months and so far no luck. I’m hoping to see if there is something else they can do xx

[Emsy in reply to Lucyloo02]

Oh sorry to hear that, it makes me so angry that after all these years women are still in agony all the time and nothing gets done about it. I used to collapse on buses, at work and home all over the place cos of the pain. Gabapentin is good but strong can leave you drowsy. I wish I could take the pain away from you take care xxx

[Lucyloo02 in reply to Emsy]

I was sent home from work on Monday it was that bad. I still can’t really walk from my bed to my door without been in so much pain. At the minuet I’m on tramadol but it isn’t doing anything. Hoping my GP will be able to give me something stronger tomorrow so I can return to work xx

[Emsy in reply to Lucyloo02]

So sorry to hear that, really feel for you, it won't always be like this it will improve but I'm not sure when. Have you got some meditation on your phone to focus on? The heads pace app is good and you can get referred to iapt by your GP about living with a long term condition as well. Again just so sorry for your suffering xxx

[Lucyloo02 in reply to Emsy]

I do have the app downloaded yeah. Also been referred to IAPT before to try get help with living with a long term condition but because of my struggles with my mental health they practically refuse to see me 🤦🏻‍♀️

[Pureunicorn]

Hi sorry to hear all ur going through, I found talking to the nurse practitioners was better then the doctors!! Now I ask to see them as they seem to have more time for u and seem more understanding 😊 I'm on the depo injection, they wanted me to have the coil but I refused and so far that has helped with the bleeding (now stopped) so might be worth asking about another sort of contraception, it's such a crap thing to have and to go through, I hope u get some help soon xx

[Lucyloo02 in reply to Pureunicorn]

I was hoping that it would stop my bleeding all together but so far it’s made it worse. I don’t think I can cope 6 months with it my symptoms seem to be worse now then what they was before xx

[Afrohair]

Write to the general manager of the g.p practice or email them and tell them what you’ve just told us you have a right to be seen and to be referred and it’s your choice if you have an operation

[Lucyloo02 in reply to Afrohair]

I think I’ll definitely be doing that. I keep been told 19 is too young and I don’t need an operation yet. I beg to differ though, I need answers and If an operation is the only way I’m gonna get that then it needs to happen x