Just thought I’d share my experience for others who are waiting and worried. Of course everyone is different so it’s to be taken with a pinch of salt.
I was very nervous before thinking of all the bad things but like a lot of people have said, it was fine. Dare I say I even enjoyed parts of it. Wouldn’t fear doing it again. Not to set anyone’s expectations high, I might just be a weirdo.
Got there at 7am and waited around with the odd check not realising my operation wasn’t until 10:45. Bear that in mind as I wasn’t given any updates or info of what was going on. Had a few tests (BMI, blood pressure, questionnaires) inbetween and assumed the ball was rolling only to then wait for another hour until another test was done and wait again. Not really a problem but I was only making myself more worried with time alone.
Spoke to surgeon and anaesthetist and asked any questions, put me at ease a little.
Was wheeled into surgery with sweaty palms from nerves but actually loved drifting off to unconsciousness. It was very pleasant. The next thing you know you’re awake from what seems a deep sleep. Can’t remember much but I know I felt peaceful somehow.. Woke up groggy and a bit dreamy asking for my partner and “Ben the vicar” (no idea who that is!) and they gave me some more fentanyl which helped with the pain. I would say the pain was 5 out of 10 when I first noticed it which went down to 2 very soon after painkillers.
The nurse said they took some endo out but didn’t have anymore details so at least I knew it was endo but no news of what stage until I spoke to surgeon a couple of hours later.
They said I needed to pee and eat before being allowed to leave which I did quite quickly but still had to wait about 3 more hours before going home. Met with surgeon who showed me pics of my organs which I was really interested in and said she would diagnose at between stage 1 and 2 which was a relief because I have bad bowel pain and problems (they said they think it was nerve related from the endo touching nerves but wasn’t actually growing on the bowel). She suggested going to the gp about my bowels to check for anything else going on like a tear.
Pain hasn’t been bad really. I’m in bed and can’t bend down etc and shuffle a bit, can’t feel any gas in my shoulder but I’m a bit gassy with burps and farts (sorry to say).
I feel pretty positive now to finally have a diagnoses and just maybe some pain free or reduced pain periods but time will tell on that. I actually enjoyed a lot of the care and medicine side of it. The nurses were warm and friendly which gave that “looked after” feel.
Anyway, thought it worth sharing that the worry before hand just makes things way worse, not that it’s easily stopped but it is unnecessary for the most part. Better to cross bridges when they come or you just cause yourself harm. Very hard to stop it though! It helps to trust the hospital and in life.
Good luck to anyone else waiting x