Positive outcome laparoscopy! Endo free

[SashaM20]

Positive outcome!

Just thought I’d give people a bit of Hope really, I first started getting pain back in June after coming off the progesterone only pill and starting the copper coil, I thought the pain was from the coil so went to the clinic to have it checked & they removed it, the pain didn’t stop. One day the pain was so bad I went to A&E and the doctor asked if I thought it could be endometriosis. After this I was reading and reading and could only find negative outcomes! I pushed to see consultants who I basically had to TELL I wanted an operative laparoscopy. I had the surgery in November and with such a quick recovery he told me I did have endometriosis on both sides of my peritoneum and of treatment had been delayed it would have spread further into organs which isn’t the end of the world but just harder to get rid of. The surgeon managed to remove it all with no issues as I was lucky to have a specialised endometriosis surgeon. The surgeon told me that I am now at the same likeliness of someone who has never had endo before, obviously it’s a little more likely as my body has had it before but he was confident that I wouldn’t have issues again. This story is not to brag but back when I was going through tests I was searching for positive outcomes and not just “infertility” and “life’s never the same”. I can honestly say that laparoscopy was the best decision I’ve ever made and if I can help even one person make that decision then that will be great.

[Afrohair]

That’s good news I had problems in April so you got referred for a lap quick I’m not even that far and it’s gone to my bowls such good news but hard to take for some as they have lived with it so long and can’t get rid.i did read one post though saying having surgery is the best option as it reduces the stage each time I guess it depends on person all the best

[Endo_Jaded]

Yep at little hard for people, I waited 16 years to be heard then another three for surgery and now I have to wait another 18 months for more surgery, because it’s deep 3+cm and everywhere and likely to impact the rest of my life! Endometriosis is a chronic illness and even when it’s excised it’s at risk of return, and can also be invisible to some surgeons, it can also present on various other locations.

Happy that you were 1 of the lucky ones whose been seen and treated within 6 months, I don’t even get to see a consultant that quickly, then I have to wait for a year or more for surgery.

You’re happy, and I’m sure we are all happy for you, but many wait a very long time to even see someone for help, and generally the outcome can be good but the risk of regrowing is still there and there has been hereditary links to. In my case all four generations have had similar concerns with three confirmed now, and a teenage daughter showing signs and she’s not even on a wait list for consultation because she’s not showing enough signs. Unfortunately, I can’t afford the private costs.

[Amywoodx]

Hi I'm so happy to hear that you had a positive experience, really needed to hear that - may I ask where your endo was and also who you saw as I am looking into finding someone who can help me too. My endo is suspected on my bowel and progressively getting worse and worse. x

[SashaM20 in reply to Amywoodx]

Hi, I had it down the left and right side of my peritoneum, I saw consultant in Southampton and he said he has been operating in Endometriosis patients for many many years so really trusted him!

[Danceloverx]

Hi can I just say thank you so much for sharing this, I’m currently in the early stages of figuring it all out and I also can only see really scary and negative comments online 😣. Waiting on a laparoscopy atm to diagnose and remove endo if it’s there and I’m hoping to get similar results to you! From what I’ve read it seems to grow back which worries me, I’m hoping this isn’t the case like for you. Can I ask how you’ve got on since your lap? Are things still positive?

[SashaM20 in reply to Danceloverx]

Hi, I was the same so wanted to help at least one person if I could! Things people never tell you post op = You won’t feel better straight away, I had pain (similar to the sharp endo pain) along my side for a few months on and off (not always like before) and was worried it was already growing back - ITS NOT! It is almost likely scar tissue and I found a scar tissue massage by a professional masseuse really changed my life post op! Just needs to be loosened sometimes but I am now 4 months post op and feels perfectly normal! No pain! I’m also on the Cerelle pill which is progesterone only, this means I don’t get periods which means it slows the endo from growing and from returning quicker (if it returns). Sometimes they offer the Marina coil which can be fitted at the same time as your laparoscopy. Hope this helps! They said to me they’d removed all my endo so I had the same chance as someone who’s never had it for it to return again, I’m thinking I’ll be more likely as I was unlucky with it in the first place but got my fingers crossed it won’t be for a few years at least! Was very lucky.

[Danceloverx in reply to SashaM20]

Fingers crossed for you that it doesn’t return and you can continue with no pain and thanks for the info on what to expect post lap as I wasn’t sure what to expect.

I’m hoping to be in a similar position to you where it can be dealt with as I only started getting symptoms 6 months ago so feel like it’s been caught and dealt with quickly.

I have also tried cerelle but it didn’t seem to suit me (I bled on it) so I’m currently sticking with a combined pill as they’ve always suited me. Merina coil is something I am considering though.

Hopefully there is a light at the end of the tunnel and being diagnosed is not necessarily the end of the world 😳 your post has definitely given me a lot more hope any way so thank you.