Main thing is I had a laparoscopy and they didnt find anything.
Had a few a years typically endo symptoms. Along with pain I was getting Diarrhea around period and ovulation. Lost a lot of weight from the Diarrhea. Had an ultrasound and sonographer said looks like polycistic ovaries. Blood tests did not confirm that so not got the diagnosis- dispite having all the symptoms except the weight (that’s only because of the Diarrhea!). Finally got the laparoscopy after a couple instances of blood in the Diarrhea and after really nagging for it I was sure it was endo. Nothing found. Discharged. Gp really dismissive I’m told it’s just IBS. This was 2014. Anyway I then got pregnant and ALL symptoms vanished.
Periods returned after pregnancy and were fairly regular but now are getting a bit irratic. Pain starting to return in my back/pelvis and the more ‘normal’ period type pain. This month my period was almost a month and towards the end I had the bloody diarrhoea again.
I don’t really know what to do. I’ve not managed to get a sample of the diarrhoea when the blood is there. And it’s exclusively when I’m on my period so I’m convinced it’s to do with that. But the laparoscopy found nothing so they won’t consider endometriosis. Even if it is endo they can’t do anything when they can’t find it?!
Anyone any experience who can advise what I should be looking into next?
Thanks!
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PurpleBug123
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I did think my lap just looked at uterus and ovaries and didn’t bother checking bowel but I don’t know 🤷♀️
I was wondering if endo on the bowel isn’t as looked for. I thought maybe with my blood in stool maybe it’s on inside of bowel so not visible by laparoscopy. No idea.
I also get the pain when pooping sometimes but it’s nothing compared to the pelvic pain so I always forget to mention it. Pain after sex too.
I didn’t even know there were medications for endo?! I’ve always been told there is nothing just take ibruprophen. Googling tells me to go gluten free but I’ve not done that yet
Yes there's a special procedure they have to do to find bowel endometriosis. The specialist explained it to me. OBGYN's usually don't do this. In the USA they have an array of medications. I'm not sure about the UK, but ask your doctor about Orilissa. Gluten free definitely helps. Wheat exaggerates my pain.
I've also had a lap with negative result so still no answers for why I'm in pain. I also have bowel and bladder issues. After the surgery the consultant told me they've found no endo and my bladder looks fine. Nothing about the bowels so i don't know if they routinely search for endo there despite me mentioning the pain. I went wheat free and found it helps, I can still eat rye bread etc. Worth a try. I also switched to dairy-free milk.
My daughter has had the same symptoms for three years and is almost 18 years old. She had laparoscopic surgery and they found nothing. I hope you find the answer, we are still searching
Hey babe I had something similar, had a laparoscopic surgery about 3weeks ago.
I was diagnosed with adenomyosis in the end.
It’s basically similar to endo but it’s instead of it being inside the uterus it grows on the outside of the uterus.
I had a mirena put in which I’m told is suppose to help alleviate the symptoms which is ridiculous even though I’ve told them that I’ve already tried the mirena and didn’t do anything except make things worse for me.
The only thing that gets rid of the adenomyosis is to remove the uterus which I was begging them to do as I’ve already got 4 kids but they didn’t listen and told me I was too young, I’m 32 and I’m 100% certain I don’t want anymore kids so now I’m stuck here dealing with the same symptoms and no proper outcome stick with the damn mirena again. I just wish drs would listen since we’re the ones who can’t live a normal life.
Btw does mirena slow down the bowels because since they put it in it’s been causing some slow movements and it’s making me very bloated and uncomfortable.
Was this procedure done by a general gynaecologist or a specialist? I’m not slating generals but sometimes they do miss endo as they’re not always quite sure what to look for and where. I’d push to get a second opinion. You know your own body. Hope you get some answers soon.
Hi I suffered with pain for 20 years felt like I was giving birth to my insides. I was told at the start it was pcos and IBS. Over the years endometriosis was mentioned but no evidence was ever found. 2 years ago I finally had exploratory surgery where other than both my fallopian tubes they found nothing wrong. Anyway still suffering I discided to have both tubes removed in the hope it would ease my pain it's a quick half hour surgery. My surgery ended up four and a half hours long because they found live patches of endometriosis .scar tissue. Adhesions all over the place. My right ovary was displaced and Fused to another organ . bit of shock as you can imagine. They said I had evidence of having it a very long time ! It's never showed up on ultra sound MRI or any test I have ever had Inc the previous surgery ! Xx
Hi I am in the same boat as you. I had a lap 2 weeks ago and they found nothing. They did check my womb, ovaries, bowels and kidney/liver can’t remember as I woke up with 4 cuts.
I am going to the GP to ask to be referred to a neurologist as I have had pains for 9 years and the past 3 years I have daily pelvic pain.
I also see a pain dr but I couldn’t start treatment as he needed the lap results. But I think it is something to do with the nerves in the pelvic region.
Yeah nothing found in my lap either and I just got thrown away like yesterdays leftovers I was supposed to have a post op appointment and never did, told the my docs I wanted to go back as something was really wrong and they said no, now I'm on the jag which is hard for me as my biggest phobia is needles, but it's stopped my periods completely so now I don't get any symptoms
I had a similar result from my lap, but they did find inflammatory tissue and 'calcification' not endometriosis... They excised the inflammatory tissue. I fell 100%better but my Dr said it wasn't due to the surgery as it wasn't endo. Either way I feel a lot better. I don't think it has to be endo for you to have pain. Pain is different in everyone. I have looked more into pelvic pain causes which I think has also helped. All the best, I hope you find your answers.
I had a similar experience, after four years of symptoms which can only really be explained by endo, (I have a family history as well) I got a laparoscopy a couple months and they checked my bowels and liver and overies etc and just said they couldn’t find anything so I’m disease free and I shouldn’t come back. Now reading on here about BSGE centres and how you don’t really know until a specialist has checked. I’m undecided if I’m prepared to do it again... it was very emotionally draining
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