Still no relief

[ilytotoro]

So i finally had my laparoscopy about a month ago to have endo removal and also cyst removed. My pain however has only slightly been improved by what im assuming is the cyst being removed and taking away that pressure pain.

I am currently taking pregabalin and zapain when needed and also had my coil replaced during my surgery.

I am just concerend about losing my job due to having so much time off, and was wondering if anyone knows of any help i may be entitled to or just any extra pain relief tips so i can go back to work?

[Dinky26]

Hi can I ask where your pain was from the cyst please? I'm also on zapain and pregabalin. I don't find they help much. I'm currently waiting for cyst removal. Sorry I don't have any pain relief tips

[Noodle1984]

I’m so sorry you’re struggling right now. I have 17 chronic conditions (including Endo, adenomyosis, and fibroids) and I've learned a few tips and tricks along my journey.

Everyone hates this and wants a “natural” way but Endo isn’t that type of disease. I really have to stress the importance of birth control of some kind. There are 4-5 different types then each type has lots of sub brands. You don’t have to suffer, you don’t have to have a period either! I haven’t had one for over 3 years. You can only have so many surgeries before you’re left in permanent pain.

There are a few things you can do for yourself now..

1. Find a pelvic physio who specializes in pelvic pain or endo. They can give you different exercises to strengthen, help with penetration and sex pain, help with incontinence, bowel pain, etc.

2. Eliminate inflammation inducing foods. Everyone hates this one, and I’m not saying you can’t cheat here or there but be prepared for the consequences after you haven’t had it in a while lol. Eliminate sugar (added, fruit sugars are okay), dairy (coconut and almond are great alternatives, and cheese from certain parts of Europe where they haven’t bred the cows to produce an extra protein), gluten/wheat (schar brand is amazing!), and soy (produces estrogen in the body which extra isn’t good). Also try to reduce the amount of processed foods and eat as organic as you can.

3. A heating pad is your best friend. Don’t try the hot water bottle, the pressure hurts my uterus.

4. Magnesium is your second best friend. When you’re feeling cramping and you can, run a warm bath with 2 cups or Epsom salt (magnesium!) and it will help to soothe. I take 400 mg of magnesium in capsule form at night, helps with cramping and to sleep. Also amazing if you have restless leg syndrome.

5. Keep a diary of your symptoms and what you were doing when it happened or what you were eating. Maybe you can figure out some of your triggers.

6. Make sure you’re seeing an Endo specialist. Do whatever you can, don’t find one that just has a special interest. Most general gyn don’t know much about the condition. They tend to only do ablation (basically removing them top and leave the root). Instead of the gold standard of excision where they remove the whole implant. I have read so many stories of woman either coming out and they find no Endo or are still in just as much pain.

I hope you find something to give you a bit of relief. Sending you healing vibes 💕

[Afrohair]

If you don't want to be on contraception you don't have to have any contraception.it only made my endo worse and dosent work for everyone it made me bleed more till I now have it near my bowl and bleed out my back end so it depends on the person if contraception works research shows that the coil can increase the risk of cysts it's entirely dependent on the person if contraception works!Also I'd like to add any endo you have can keep growing even if your on contraception plenty people have been in agony whilst on contraception it's trial and error to find what's best for you

I was pain free from diet only vitamins and using asprin and progesterone cream (see my posts if you would like 😊)

However after research (Laura Biden book on period repair)I found the most effective method for endo is the coil I will myself try this in the future to stop the bleeding as I can't stand bleeding out my backside on my monthly and the amount of blood ridiculous although the pain subsided on diet the bleeding didn't and it's not something I want to put up with.

I was like you couldn't go to work the natural way worked for me Pain wise I'm currently pregnant so bleeding has stopped.