Feeling down

[GoldenGirl2002]

I’ve had a really difficult last few months and just needed a place where people would understand. I’ve been in constant pain since June and vomited almost every day since then with pain. I’ve had to call an ambulance and been admitted to A&E multiple times and the effect of the vomiting in itself is worrying me. After the only advice my gynae consultant could give was to “stay positive”, I’ve ended up going private with a lovely doctor but the wait for surgery dates are still difficult. Sorry for the rant, I just wondered if anyone goes through the same or has any advice? Xx

[Hidden]

Bless you I hope you feel a little better soon, honestly all I can say is that it will get better from experience at one point in my life I thought is this how my life will be and I just couldn’t see it getting any better I was scared to leave the house. I had my surgery nearly 3 years ago and then went on the pill honestly my quality of life is soooo much better! I do need another op but going to wait for a while. Good you went private because I did too things will move faster, get your op date in as soon as you can and hopefully life will feel a little better again. If you just want a rant feel free to message me xxx

[GoldenGirl2002 in reply to Hidden]

Thank you so much this is so lovely of you! Xx

[Louise85]

Hi, I constantly feel down and feel like I am going insane sometimes but just remember it's not you it's the symptoms x everything you feel a bit low try and do something what you like x

[GoldenGirl2002 in reply to Louise85]

Thank you xx

[EndoEffect]

Hello Golden Girl. So sorry to hear of your struggles. Sending you lots of love. I have been in constant pain for the past month and haven’t been able to go to work (I work full time as a nursery nurse doing 10 hour shifts on my feet). I’ve been to A&E twice now and feel like I will need to go again today. I feel the same way. Nobody is giving me any answers and waiting for gynaecology appointments, scans and tests is taking forever because of Covid. I just keep being sent home with super strong pain relief and told to rest. But it is putting my life on hold and I don’t know what to do. It’s affecting me financially and it is affecting my relationship. What have the doctors said to you and have they been able to relieve your pain at all? Take care of yourself. X

[GoldenGirl2002 in reply to EndoEffect]

Thank you, I’m so sorry to hear about how much you’re struggling and I hope you get some answers soon! I was given morphine to take by the hospital yesterday and I’m going to have some surgery to try and remove the worst of the Endo I just hope it’s the way forward! Have you got any further? Xx

[Konfi]

I’m so sorry to hear you are in pain. I’m very similar pain/vomiting started in June (multiple AE/GP visits) and I have now gone private because of the wait during COVID. I’m waiting for my first Lap.

I have found life style changes helped a little. Pain hasn’t gone away but able to manage it better while waiting and also give a sense of control. Gentle exercises like walking/yoga helps distract me and make me feel better. I generally feel better when I’m doing something. My bowels feel better clean eating ( lots of green veg, no dairy, anti inflammatory food etc). Magnesium baths (3 times a week), deep breathing/avoiding stress allows me to sleep better. Hot water bottles are our friends.

Just trying to do all I can whilst I wait for surgery. I haven’t delved into the supplement world yet as I’m due surgery and didn’t want any unknown side effects.

It’s good to hear from a few people on here how much better they felt post op. That also helps me cope mentally. You have every right to rant, it’s super sore and I hope you get some help soon xx

[GoldenGirl2002 in reply to Konfi]

It’s really awful I’m so sorry you’re struggling too! I’m trying gentle movements but I tend to be sick even from walking to the bathroom! Like you, I’ve ended up going private because my nhs consultant was very unhelpful so I’m in for removal of the worst Endo in 2 weeks, keep me updated on how your own surgery goes I’m wishing you the best xx

[Konfi]

Looks like our surgery will be at similar times. Will keep you updated. Wishing you the best too. Till then I hope the pain and nausea eases off. xx

[GoldenGirl2002 in reply to Konfi]

Thank you so much and good luck xx