Pain nearly everywhere - has anyone else experienced this?

[LokiSunflower]

Hi Warriors 💛

I had my diagnostic laparoscopy April 2016 at age of 24 and since then my pain has worsened. I have been able to stay in work up until three weeks ago when the fatigue and pain just got too much and unfortunately Tramadol started to give me negative side-effects.

I’m now trialling my third medication since going off sick from work and the pain is continually getting worse to the point where it seems to be everywhere; in most of my joints, muscles as well as the usual pelvic/back/ovaries/shooting through hip down leg etc.

Does anyone else experience this? I know that with chronic pain the pain can start to travel but I’m now starting to convince myself I have another underlying condition.

It would be great to hear from anyone to help with convincing myself that I’m not making this up. X

[AllthatGlitters]

Hi I didn’t want to read and run after seeing your post.

I ache all over due to gynae conditions but I also have fibromyalgia. It can make you feel shattered, sore joints, aching muscles, even someone brushing against your skin can feel like they have hit it hard, you can sleep all night but still be so tired in the morning.

My GP diagnosed me based on the fact that I had been going to the doctors for 20+ years composing of being tired. I had moved and got a new GP who was much better and gave me this diagnosis.

Have a look on the NHS website to all of the symptoms and see if that fits you.

Please ask anything else if you need to x

[lornacampbell78]

Hi. I have been symptom free for 8 years now. I am 45, diagnosed at 23. 4 laparoscopies and I had pain in my shoulder and nose amongst other places. Was told it was endometriosis travelling around my body. Main area for me was pelvic ligaments. I am on cerelle mini pill permanently. Now also on HRT as Menopausal too! Keep asking for help,!

[LokiSunflower in reply to lornacampbell78]

What has helped you be symptom free for the last 8 years? Yeah I’m determined this time to get it sorted properly, even if it means being away from work for a while to help get a better quality of life x

[OstaraMoon]

I also have pain all over and it travels I wouldn’t think it’s something else. Perhaps your endo has spread out a bit - I hope not but I’d check with your specialist just to be sure. This disease is definitely so tough. I love your intro “Hi Warriors” that is for a good description of all who go through this are 🙏💗

[BrightLights88]

Hi, have you had a lap yet and are you with a BSGE centre? I was diagnosed with endometriosis within 3days of getting severe pain,pelvic, abdominal legs and thigh the whole lot. I was admitted 9 times to hospital to help me with the flare up pain thats when I did research and discharged myself from gynae specialist to go with a endo specialist hospital. After 11 months of going through pain, to the point where it felt like my whole uterus was going to drop out I finally was under great care. within 3 months, I had a mri scan which stated my endo is now stage 4 and has damaged my bowel. I had my first lap and now since Aug 2019 been endo free. I was in codeine but that at times never worked well, I then moved over to cocodamol after surgery and since never needed any pain relief. I suffered all the pain you mentioned.