2 days to go....

Well tomorrow and Wednesday then the dreaded day is here Thursday for my abdominal hysterectomy. Any one give me some feedback on open surgery I'm getting so anxious as the days pass now I have a feeling I'm gona have a massive panic attack and leave the hospital. Hope everyone's doing well.... Xx

[Moon_maiden]

I’m sure you’ll be fine, you’ve covered everything you can. I’ve only had a lap, sorry I can’t help on open surgery. Focus on how much better you’ll feel after, might be a few months, but life should be improved.

I’m a bit jealous at the moment, would like nothing more than to get rid. 😊, likely open as well.

Keep us updated how you go 🙂

[Hidden in reply to Moon_maiden]

Have you not asked them to consider it an option for you? I've had 3 hours sleep I'm so anxious. Xxxx

[Moon_maiden in reply to Hidden]

Have you tried meditation? Something that talks you through a scenario rather than just listening to music. There are some free ones on Amazon, potentially YouTube, but haven’t checked. I’d be scared, even though I would go through with it and try not to run. Only had one op which was lap in Feb. About the same last night, watched about four/five episodes of a series on Amazon. It’s only taken a couple of weeks to get into series 5. 😂

I haven’t raised it specifically, still waiting for this endo MDT meeting. I was told yesterday that the BSGE consultant is back off holiday today, so hopefully that won’t be long. I’ve suggested to the secretary of the consultant I’ve had so far, that I’d see the other privately if it it would speed things up just to get some sort of normal life.

On the whole, apart from the surgery bit, do you think it will improve the whole quality of life side?

[Hidden in reply to Moon_maiden]

Do I think a hysterectomy would improve your quality of life or mine? Is that what you were meaning xxx

[Moon_maiden in reply to Hidden]

Sorry meant your quality of life. I’m sure it would for me, can’t be any worse 😂

I’m trying to focus on potential long term to get through it.

[Hidden in reply to Moon_maiden]

Oh yeah for sure I've tried little operations all medications even being put in to in to menopause it's my only option left I c n t keep being admitted to hospital every other week xxx

[Moon_maiden in reply to Hidden]

Definitely not sustainable and exhausting!

How are you feeling today?

Had a whinge at surgery today to find out why an actual referral to the pain clinic was done as urgent, only a message sent.

[Hidden in reply to Moon_maiden]

Wat pain relief are you taking at the mo. I've come of everything ready for this surgery xxx

[Moon_maiden in reply to Hidden]

Tramadol 1 x 4 a day, and paracetamol. Yesterday supplemented with morphine in the afternoon and silly o’clock this morning.

Have tried Naproxen, Nefopam previously. None of them really help much. Read a good article last week about nerve pain/blocks with endo, which sounded like my symptoms, hence chasing things again.

[Hidden in reply to Moon_maiden]

U have to chase and chase until you get somewhere and you feel more comfortable are you from the UK? Iv always used the NHS but had an appointment at private hospital but through NHS and the treatment was so much different xxx

[Hidden in reply to Moon_maiden]

How old are you I'm only 29 and after 10 years of trying different things I was finally offered a hysterectomy. I can't take tramadol lol I feel so spaced out of them xxx

[Moon_maiden in reply to Hidden]

I’m 52, diagnosed last year. Technically should have got past this as a diagnosis, but probably been there years and I’ve managed as time went on. It’s now rebelling big time.

You’ve thought about it so much and not rushed into, still a very tough decision to have to make. I never dreamt I’d feel like this. Have you got good support at home?

The RCOG site has some good patient info for hysterectomy and recovery. Might be something you haven’t come across.

[Moon_maiden in reply to Hidden]

I gave up with NHS end of last year and saw gynaecologist privately to get some answers. Just wasn’t expecting that one 😂

[Hidden in reply to Moon_maiden]

Yes I've had a good 10 years of it and it got to the point my husband was taking care of me and the children because I was in awful pain daily it was really my only option to have a normal life again. Is that all there offering you at mo pain clinic xxx

[Moon_maiden in reply to Hidden]

Did your husband have any views on the situation, he’s obviously a good guy with support. It’ll be easier for you to help and have fun with your children in a few months as well.

Haven’t got as far as the pain clinic, it was a pain nurse at A&E the other weeks suggested Tramadol and they’d tell the GP to do a referral. All GP has done is asked them what they’d recommend. It’s like blood out of a stone most of the time. See what happens next.

[Hidden in reply to Moon_maiden]

I get you totally I had 10 years of it, it's OK for them cos it's not them going through it I'm so glad the end is near. Yes he did he was all for it same as me, we have 2 children and like iv said its so dangerous for me to have any more children anyways. He's being brave for me telling me not to worry they do this every day and risks of anything serious are quite low. Xxx

[Moon_maiden in reply to Hidden]

They are, I checked before lap 😂

I did tell the consultant that if something went wrong don’t wake me up! Not sure he was impressed...

You’re probably right in that he’s being brave, you all are 😊 it’s not something we’d choose

[Hidden in reply to Moon_maiden]

I'm sure I will be fine xxx

[Pureunicorn]

Hi, I cant give any advice but just wanted to say good luck and hope all goes well, it would be nice to know how I get on as I'm waiting for a full hysterectomy too, sending hugs xx

[Hidden in reply to Pureunicorn]

I will let you know when I'm back on the ward won't be going down till between 2 and 4 pm on Thursday so il come on and let use know Friday. Thank you for being so kind xxxx

[Bubble_by]

Hope it goes well for you 🤞 💕

[Hidden in reply to Bubble_by]

Awww thank you so so much I haven't helped my self at all watching gory videos on open abdominal hysterectomy. Silly I am xxx

[Bubble_by in reply to Hidden]

Hehe I did the same thing before my laparoscopy! Still they were very kind to me at the hospital - all I can say is I'm glad I was unconscious for it! 😂 Xxx

[Ambersun1]

Good luck, be brave 😊

[Hidden in reply to Ambersun1]

I have no choice now I have to go after all this lol thank you all so much xxxx