Not even 1 year ago!!: Hello ladies I’m... - Endometriosis UK

Endometriosis UK

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Not even 1 year ago!!

Love_Yellow profile image
6 Replies

Hello ladies

I’m really struggling to cope with this pain....

I had my first Lap in October 2019 and was told I had Endometriosis.

Since then I have been in hospital a few times because of my pain.

I do believe that my Lap was just a diagnostic Lap and I had no treatment done.

I have been referred to another hospital because I have asked for someone that specialised in endometriosis. My appointment is in August.

This pain I am experiencing seems to be occurring more and more!!!!

Has anyone had another Lap in less than 1 year?

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Love_Yellow profile image
Love_Yellow
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6 Replies
Linley profile image
Linley

No, I have not because when Lap was preformed my Gynae tidied me up, cysts, adhesions etc. I was put on Provera for 18 months bliss! Did have 2 more Laps staggered a few years apart that was because this time had fibroids, polyps and new Endo. Could you not ask your GP for for a suitable pain killer until you see the new guy? 🤔

Love_Yellow profile image
Love_Yellow in reply toLinley

Thank you for your reply.

I do believe my Endo has got worse....🥺

I’m currently on Oral Morphine and paranormal but on my bad days this doesn’t stop the pain 100%

Linley profile image
Linley in reply toLove_Yellow

Heavens! Poor you that is bad, remember your GP has a duty of care to keep you pain free so keep pushing

Lily1986 profile image
Lily1986

Yes.

I’ve had diagnostic laps which on each occasion have shown endo too severe to treat there and then so have had further extensive surgeries a few months later with an endo specialist and a bowel surgeon.

Despite excision surgery the endo pain has always gradually returned pretty quickly after each op.

You are doing the right thing waiting to see the endo specialist. Hope you get the required treatment.

Has your GP given you any decent pain relief?

It’s a horrible disease, I’m now in pain every day. Had tubes and left ovary removed so won’t ever have my own kids, it’s damaged bowel, bladder, nerves and ligaments.

I hope you manage to get some good pain killers to tide you over until you get treated .

Good luck xxx

Lily1986 profile image
Lily1986 in reply toLily1986

Sorry just read your above reply and seen you’ve already got strong pain relief xx

Love_Yellow profile image
Love_Yellow in reply toLily1986

My Lap I had in October 2019 I was told I had endometriosis and they had removed it, to them be taken into hospital a few months ago because I collapsed in pain. I was told that my Lap was just a diagnostic OP and nothing was removed and I also have cystitis on ovaries of which I wasn’t told about and still don’t know anything about them.

I’m sick of been in pain everyday, I don’t feel like me. I feel like a burden to my partner and try to put on a brave face and do things because I feel guilty he is doing everything🥺

I just feel lost and scared if that makes sense.

Xx

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