hysterectomy or not?

[Sol2023]

Hello

I was diagnosed with endometriosis 2 years ago but have been suffering various symptoms probably because of it for about 10 years (IBS, Back Pain, Fatigue, heavy periods and other symptoms others have shared here).

I had surgery (laparoscopy) 2 years ago where a cyst was removed from an ovary and endometriosis was confirmed and some clearing was attempted. Now I am due for another surgery but this time with an endometriosis specialist. He has made a full diagnosis explaining that the endometriosis has spread around and is attached to my rectum. I also have large fibroids in my womb which he says will be difficult to remove if the womb is to remain intact. He says I should choose either between a hysterectomy (but not remove the ovaries) which he feels will be most helpful; or to clear as much endo as possible but leave the womb (and fibroids) in place.

I wonder if others have been in this situation? What are the consequences of a hysterectomy - emotionally? physically? affecting periods?

For any who have back pain like me, how do you get best pain relief?

Thanks

[Username12345678]

Hi there, a hysterectomy is a very personal decision as there are many factors to consider. In my case I did not want children so it made the decision somewhat easier but it was still hard. All I can say is I’m a year post hysterectomy and it’s the best thing I ever did! I no longer have the pain or reduced quality of life that I had. Good luck!

[Sol2023 in reply to Username12345678]

Hi, thank you for sharing your experience, good to hear that it went well for you.

[Purpstar]

Hi I’m waiting for Hysterectomy and they are leaving my ovaries if they are ok to be left.

I have endometriosis on my bowel urethra and around my umbilical area. I really suffer with back pain leg pain and everything else that goes with it.

I just want a hysterectomy now as I really struggle. But it’s your decision as you know it’s a horrible condition

You will know what’s best for you x

[Sol2023 in reply to Purpstar]

Hi Pursptar

Thank you for your reply. I’m in the waiting list for a year now. Meanwhile I’m suffering with severe back pain and leg too. I hope your hysterectomy goes well. x

[Purpstar in reply to Sol2023]

Thank you I rang up they said it will probably be September or October for Hysterectomy hopefully. Good luck x