No idea if this is endometriosis? Low grade fevers?

[LaurPharm]

Hi ladies,

This is my first post but just wanted your take. I'll try not to make it too long.

I'm 26. I have a long history of various (largely unexplained problems) I have been assessed by gastro for rectal bleeding, pelvic/adbo pain - no cause found presumed IBS.

I had a long period of painful intercourse and was told it was vulvodynia. This improved for a bit but is now back, was referred for psychosexual counselling but didn't ever book on for one reason or another.

Ive had long standing pelvic and flank pain that comes and goes.

Ive had clear pelvic ultrasounds, minus odd follicular cyst.

In the last 6 months or so I seem to have developed this odd thick, dark - almost tarry discharge for about 5-7 days BEFORE my period starts, my periods can be pretty heavy but then only last about 4 days max with the heavy bleeding.

I get pain, I use hot water bottles from time to time, painkillers etc. I WOULDN'T**(noticed my error) say I was in excruciating pain - which is why i've always discounted endo, but I went to a GUM clinic to ask about excess vaginal discharge (been with my other half 8 yrs - not because suspected STI ha) and she was the first person to mention endo. Says that it isn't always terrible pain.

I get pain around ovulation too.

Now fast forward to start of April (I developed a fever, drs have pretty much ruled out Covid, i have had persistent low grade fevers (37.8-38.1 in afternoon/evenings) for majority of this month. And they're investigating me for this - bloods have come back normal but want to send me for chest x-ray to rule out lymphoma... obvs very worried about this but think couldn't possibly be a cancer when I feel otherwise pretty well.

So I wonder - do any of you ladies get fevers? and do my symptoms/story sound familiar or likely?

Thank you all in advance.

[Moon_maiden]

Hi

If you haven’t had a referral to gynaecologist it’s probably a good idea.

After too many years of irregular, painful periods, things went downhill last year and was diagnosed endo in December, confirmed in Feb. On one visit last year to GP had a slight fever, she considered sepsis, bloods came back ok, so I’d assume all related.

Don’t leave it the way I have letting it roll, I managed the pain on normal painkillers.

[Afrohair]

I tend to feel generally unwell around period time when I went to a and e once they said I had high inflammation markers and it’s every time I have a period it might not be quite the same but it’s probably linked to your cycle x

[priyainindore]

Hi there, a few weeks ago , a few days before my period being due I felt cold, shivers slightly, and had a low grade fever for a couple days, achey muscles. Wasn't sure if it was related to gynae related symptoms i'm getting or due to Covid but took the necessary precautions to isolate.

I am awaiting a diagnostic lap (it was scheduled for 30 March but got postponed a week before). I also had a pelvic ultrasound which indicated only a fibroid, and a pelvic MRI which apparently came back normal. I'm currently under Gastro and Gynae as I experience slow bowel movements, constipation and nausea brought on by eating in the lead up and during my period for the first couple of days.

As well as the lap, I'm awaiting a colonoscopy just to rule out everything. Again this was also cancelled due to Covid.

Immediately after my period, I experience lower right abdominal pain which radiates up my back, and sometimes in the pelvic area, the usual bloatedness, and feeling every time I eat/drink anything. I also experience deep dull pain in the lower right side of my abdomin, not sure if its' ovulation pain, however it tends to last a few days.

I suspect its adhesions/endo.

I had a c section 3 years ago and the pain has definitely gotten worse since then.

I definitely get over anxious that it's chronic pancreatis, or my kidneys or IBD, but they have indicated that my scans all come back normal and bloods also do.

Anyone else in a similar boat?

[vixstar84]

Hi.

When I first kept ending up in hospital before my endo diagnosis I ALWAYS had a low fever and it would come down afterwards. It was always consistent with whenever I had flares which was twice a month at the start. So answer to your question is yes. Also rectal bleeding and I had painful sex for years but didn't think anything of it as wasn't 'ill' until everything went from one extreme to other. So I'd deffo push for referral to an Endo Gyny. Good luck getting the answers that you need! x

[Bjshaw92]

Diagnosis of endo can take years. It took me 10 years to get the doctors to take me seriously and a further year to get diagnosed.

Fever is normal with periods and ovulation too. I’m like a furnace every other period.

If haven’t haven’t already, ask for a smear test. The pre bleeding could be a sign of endo, a reaction to your medications or it could be a sign of hpv (probably isn’t, but it’s better to get the all clear than be in a mess.)