Nerve pain in Arms , is it related to endometriosis?

[Piyumi1234]

Hello ladies

I have gone through pelvic pain and bleeding for last year and finally diagnosed endometriosis through a laparoscopy. Doctors informed tissues has been removed and also adhesions. But I still feel the pelvic pain and goes down the legs. Not just that I can feel my nerves sore in my arms and all the joints. Gynecologist said legs can affected with endometriosis but not the arms. Have aby of you felt similar symptoms? Some research says it can affect the nerves system and arm pain too. I'm un so much pain every night and it's really hard for me. Please help if you know anything.

[MangoStickyRice]

I get this down my legs but also arms, shoulder, neck. Pain trapped in joints also. From what I have read, referred pain from Endo can be anywhere in the body so concerning they would say it’s not possible for it to cause pain in your arms - they sound like they don’t know much about Endo in that respect.

[Piyumi1234 in reply to MangoStickyRice]

That's very true. She is a gynecologist but im sure not specialist with endometriosis. Now I'm waiting for pain management team as she refused to do a hysterectomy. This pain is so awful.. its like stabbing all over my body.

[Piyumi1234 in reply to MangoStickyRice]

Thank you so much for replying. It's a biflg relief for me now..

[1Poppy1234]

I have pain in my shoulders upper back and arms too. 😔

[Piyumi1234 in reply to 1Poppy1234]

I'm glad to knownits related endometriosis. Iwas panicking after gynecologist refused to accept its from my endometriosis. I was shattered thinking its a different thing and giw am I gonna face it as I'm having too much going already. Thank you for taking your time to reply to my post. Appreciate it

[1Poppy1234 in reply to Piyumi1234]

I think the more you read on the forum and research the more you realise these things are related don't you. My left hip is sore and painful no matter what exercise stretches etc I do and I've read lots of others the same. Keep pushing you know your body better than anyone. X

[BloomingMarvellous]

A sideways take on this & I get it too.

First inflammation is a factor for endo and flares from where I stand seem to affect me body wide so am sure there is a systemic response of the immune and hormonal response to the flare process. As an alternative therapist I am blessed with having a wider view of the body than just a “direct disease related “one . Looking more broadly may help here

If you think about the shoulders, diaphragm and pelvic floor as a linked musculoskeletal pump moving in relation to one another then it begins to make more sense. The pelvic floor and diaphragm work in concert to maintain many body systems digestion, blood circulation, breathing , mobility etc etc. The diaphragm can become overly worked or spasm if the pelvic floor is less functional because of physical and other trauma in the tissue. In turn the neck and shoulders become overly worked , tight and less effective. You can get significant tension, neck pain , migraines etc.

As your lower back and pelvic areas adjust however modestly to pain, to work around adhensions, become overly tight our gait also adapts to try to cope. Small gait changes can have significant effect on our upper body position and muscles which can also cause pain in the shoulders , neck and yes, arms. We swing our arms as we walk and the cross body action is responsive to how the lower body moves. These small adaptations over time will cause discomfort and pain.

I found understanding pelvic floor function and hypopressive breathing a key to reducing my overall body pain. Try looking at resources like @corerecoverypt and Dr Angie Mullers discussion with @leah-brueg podcast 52 for a good in-depth discussion.