Help please. Scared and confused - Endometriosis UK

Endometriosis UK

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Help please. Scared and confused

begart profile image
12 Replies

i havent been on here in a while due to waiting for my appointments and so..

ive only written one post on here before which stated my symptoms so ill quickly repeat them i get really heavy painful periods for about 7-8 days. the pain shoots down my legs and is also in my pelvic area, i also have pain during sex as well as lower back ache that feels like youre being dragged down. ive been on the pill since i was 14 and that controls irregular bleeding but nothing else and in the past 2 years the pain has definitely got worse.

I had an appointment at the hospital. The lady has suggested that I have a laparoscopy and whilst I am waiting to continue my pill pack for 3-4 months so i have no period in order to deal with the pain but also to see whether i get pain when im not having a period (i only really get the pain when im on my period apart from pinching feeling sometimes). at the time i agreed because i thought it was a good idea to not have a period for a bit of a break! its really hard to get in my doctors to get my new pill so i have been off the pill for about 5 weeks now but i have been bleeding every other week, heavy with clots. im so fed up! on the one hand i want to try this new pill. but on the other hand i think the irregular bleeding is a way to get the doctors to see that something is going on when im not on the pill (i always had irregular bleeding before i started the pill the pill just seems to control it) because the lady who i had was a bit like 'so you never have irregular bleeding' to which my reponse was no not on the pill as that controls it so i feel like she dismissed that as you dont ever get irregular bleeding.

she also suggested that i could take the drug that brings about temporary menopause for 6 months which i dont want to do. im just worried to be honest that at the end of all this there will be nothing wrong and ill have to deal with the pain all the time - instead of them maybe being able to do something. i just wanted a bit of advice,

thanks ladies x

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begart
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12 Replies
Rach3187 profile image
Rach3187

Blood clots are normal aren't they if not then I suffer from this too my cycles messed up completely it use to be 4 weeks an now it's like twice a month or every 3 weeks. 5-8 days (depending) lower back pain, well I'll find out the outcome of the results real soon...

Know what your feeling ive been suffering from this few years and had ultrasound tests and all clear.... Even tho the Dr's can't work it out so I finally got medi acid that seems to do the trick for cycle pains.... But every 3 weeks looks like it won't get back to normal.

begart profile image
begart in reply to Rach3187

Clots aren't normal if they are bigger than a 50p coin. Have you had a laproscopy? Hopefully you will be able to get it sorted soon :( so sorry you're going through pain xxxx

Rach3187 profile image
Rach3187 in reply to begart

Hmm... Well ongoing issues with pelvis pains weight loss hopefully will hear an outcome on my mri Friday

begart profile image
begart in reply to Rach3187

Good luck I hope you are able to get a treatment sorted xx

Rach3187 profile image
Rach3187 in reply to begart

Thanks, gonna see what she said etc

Have you looked at the symptoms of adenomyosis?

Rach3187 profile image
Rach3187 in reply to

I have... Haven't had lapso but cos could have IBS as having lower back pain...... I know that can mess up cycles up plus weight loss which well I'm underweight always have been.... Will find the outcome hopefully to narrow it down to see of I have got IBS

begart profile image
begart in reply to Rach3187

I hope you get it sorted. I don't have any weight loss or anything and don't think it's ibs it's related to the womb! What tests have you had done x x

begart profile image
begart in reply to

No what is that xx

Rach3187 profile image
Rach3187 in reply to begart

Thanks that is a digestive disorder inflamed bowels of certain foods, feeling sick,tiredness, foggy thinking, musscus....

begart profile image
begart in reply to

No what is that xx

in reply to begart

Have a look at

m.adenomyosisadviceassociat...

I am newly diagnosed and I think a lot of what I thought were endo symptoms were actually adenomyosis.

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