Prostap Injection

[Cardiff87]

I was meant to get my 6th month prostap Injection tomorrow, which was already delayed. I've just had a phone call from a nurse to say the clinical director has decided for me not to have it. The clinic is still going ahead but I am not going to have it. I can't tell you how much this has knocked me. I'm in severe pain atm and with that keeping me going the last week, it has taken me straight back down. Sorry for ranting when everyone else is in the same boat, but I needed to let it out 😢 x

[Moon_maiden]

Bit odd, did she give a reason? If not best to get one and mention the pain side of things. Clinical director is not a medical reason

Rant away, it’s awful to deal with.

[Doubletrouble9088]

Try and talk to your GP if possible, if not find the community nurses number in your area. Im really surprised this isn't considered clinical. Maybe also really emphasis why you need the injection over the fact its a contraception. Also don't back down, if you're in pain you have a right to be heard no matter how crazy the world would get. A nice analogy is that they wouldn't leave severely ill people without medicine that can sufficiently cover their care

[Cardiff87]

Thank you both for taking the time to reply to the below. I've cried so much in frustration today. I'm in so much pain and know I won't sleep tonight now due to the pain. I know prostap was only short term for me, but the last 2 months I do believe it has helped with slowing the growth of the endo down. I just feel I'm back to square one and so alone. I don't want to feel so low as I did a few months ago. My husband got in contact with the secretary this afternoon and she said she is going to talk to the consultant tomorrow. Just so glad this community is here and everyone understands. Thank you all endo warriors xx

[Moon_maiden]

Let us know how you get on tomorrow, so sorry your going through this. Try not to get too upset, very much easier said than done I know.

I know wheat bag has helped the last few days. Did gave to take painkillers after shopping though.

Take care 🙂

[Jasmin24]

I've just had my fourth, last week, at the hospital. I'm a little worried about it too. But the nurse reassured me the clinic will still go ahead.

I'm sure they are trying to keep you safe...it is a bit of a dilemma, especially if we can not get the treatment that we require.

Hang in there. 🙂

[Reethi19]

Hi, sorry to hear this, it sounds very stressful. If the reason is purely about social distancing, is there anyway you could self administer? Or will they be willing to give you it if they get all of the PPE on? I had a similar situation as my nurse wouldn’t give me the depo provera injection but luckily I could get hold of a self administer option. Before I had done this the nurse said she could give it if it was essential but would have to be wearing all of the PPE. It sounds important that you have it for your physical and mental health, good luck x

[Omgkxc]

I had my prescription at home and was due my injection on Wedesday. But I'm isolating due to my asthma. So I spoke to the nurse on Monday and asked if there was any reason I couldn't do it myself. Or get my mum to do it. She talked me through it and on Wednesday my mum did it for me. It wasn't as smooth as the nurse lol but it was ok. If you have your prescription could you or someone do it for you? Hope you get some help from them ASAP.

[Cardiff87]

I can't thank everyone for taking the time to reply. It makes me feel so emotional that people are taking time out of their lives to reply to me - I'm feeling rather sensitive atm.

Ive been suffering severely now for about 8 days. I've had 3 nights out of 7 where I've had zero sleep, which unfortunately I'm not exaggerating. Last night I finally dropped off about 3.30am and up at 7am. I'm in so much pain today but trying to hide it from my husband and daughter as much as I can. I hope it's not too much info, but it feels like it's growing quickly inside and pulling on all my organs. I can't stand straight as it feels like it's pulling on everything so much inside. I feel so low and alone.

The nurse didn't offer me anything and I feel awful for moaning to healthcare staff atm especially with everything that's going on. I've got morphine and tramadol at home, but nothing seems to be helping. So sorry for a Sunday morning moan to you all. Sending big hugs to all xxxx