I have just had the dreaded phone call off my operation being cancelled ðŸ˜ðŸ˜ðŸ˜
I'm literally so emotional right now I dont see why the would make me go for my pre OP on the 18th and two days later they cancel my operation anyway!!
Not to wait all this out and fight again .... if there is anything left inside me to fight....
Don't give up hope my lovely. Sending you hugs. 💛💛
Hello
I know it must be difficult but they are reacting to the ever changing advice around covid-19. Which is probably why they did your preop because at the time they thought it would go ahead.
It's delayed you won't have to fight to get a lap again. As you're already on the list it's just with everything going on, they've had to delay you, it does mean a longer wait but it doesn't mean they've completely cancelled your lap and you have to restart. It's just that date is cancelled.
as I’ve said recently although it awful you lost your operation appointment please be mindful and understand their is such a bigger crisis going on that needs tackling when all resumes you will be first to get your operation done you won’t be deferred down the list !as an endo sufferer we are used to the waiting process.please try to distract yourself in other ways my love and not stress over things we cannot change x
Dont state the obvious. I obviously know all that's going on I work in a VERY BUSY SUPERMARKET! i just felt very sad and this is where you can tell rant ask advice many other people have put the same sort of thing have you piped up on there posts to?!
There’s really no need for the abuse
You obviously haven't had a treatment/ operation cancelled last minute by your post so you shouldn't know the feeling and just looking on your page you could be in the same boat soon.
Wow. I don't think that was called for at all and I don't think Afrohair was being unkind, you on the other hand.
My surgery was cancelled twice at the lap stage, once at the third excision and once before hysterectomy. I don't know the reasons for the first two, but I know there were no global pandemics, clearly there was something more important though. Did I feel let down and sad, yes. The one before, was because a new mother has started haemorrhaging, she hadn't met her baby yet and when she would she'd be told she didn't have a way of carrying anymore children. I know because I sat and held her husbands hand whilst I waited to be picked up. L
I was sad that I had to wait a little longer to hopefully end my pain, but his wives hadn't even began and she had no idea how much it was going to hurt, no prior warning, no cancelled appointments.
So instead of jumping down people's throats, remember there is always the chance that surgeon will be saving someone's life on the day you were supposed to get your surgery.
I completely agree. I’ve been suffering a lot, like everyone else but we can’t slide into self pity.
Of course we can get upset, cry etc but we must try and see the light at the end of the tunnel too.
Yes, we don’t know what everyone is going through at the moment, but that’s the point.
People are dying of the Coronavirus, thank goodness we aren’t dying. All of us who have had surgeries cancelled will get them, just unfortunately at a later date.
We should all be grateful that things aren’t worse, and posts like Afrohair’s are there to remind us of that, and to keep fighting. Im a teacher, so I get it too; I’m on the front line looking after the kids of people who can’t or who are key workers.
I’ve been avoiding reading those ‘I’m depressed, I don’t know what to do’ posts as they don’t help us at all. How about asking for tips to get you through your stress? This will help you. We have to be strong and be strong for each other.
None of us are alone, we are all going through heartbreaking times too.
Surgeries will be rescheduled, and life will eventually go on.
Stay positive, everyone.
Keep posting your positive tips, they are really helpful.
If you have any tips I'd love to try some please?! Anything is worth a go.
I work in a busy supermarket so I am awear I didnt mean to sound selfish and I am sorry about that, I took her post like she meant I didnt realise what was happening when I am very awear,
I had not long posted this post after my phone call so was very emotional at the time .
I hope that you’re feeling better? It’s crap, you have every right to be upset.
I watch cute dog videos to cheer me up. I started reading ‘The Doctor Will See you Now’ by Tamer Seckin and it’s great, you really feel like you’re not alone.
Sending hugs xx
I have apologised I clearly took her post wrongly
Actually I went out my way to cancel my own appointments one of them being my sons tumour.I didn’t want my son being exposed to unnecessary risks in hospital while this virus is around which I’ve waited a year and a half for so don’t be so judgemental
You message came across as if I shouldn't feel down about it when I have every right to. I know it cannot be helped I am very awear of everything going on and that people are dying I ain't saying it ain't bad because its terrible.
I'm sorry that I took your message wrongly.
Ok I was purely trying to lift your spirits and it wasn’t intended that way so I apologise too x
Honestly, I totally understand that there is a bigger crisis going on. But it’s still heartbreaking because for some of us it’s taken months or weeks to prepare for this treatment (which alone you wouldn’t wish on anyone) so I totally understand your pain and frustration. You are allowed to process what’s going on don’t let anyone make you feel as though your pain is less than. Thinking of you and sending you hugs! Xx
Amen. Thank you, at least someone understands, it's just upsetting to finally get to this stage and get so close to it happening for it all to be cancelled, yeah I know I'll get the appointment again in the future sometime... but noone actually knows when this is going to all go away and the be more covid 19. It could be next month it could be next year. Im sure I'll be okay I'm learning to deal with the pain but shop brought painkillers dont do nothing and I dont think my gp would give me any.
Thank you for your kind post,
AND
Before anyone else thinks I'm selfish I do care about what's happening I work in a very busy supermarket so I am very awear of the current situation, I'm just frustrated and sad to have to start the waiting process again, some people obviously haven't had their treatments cancelled last minute,
It’s not a selfish thought, it’s gutting. I’ve been with someone when an op was cancelled, I was more stressed than they were as I’d been dealing with all the travel etc.
So sorry this has happened, it’s all the psyching yourself up in advance.
Take care, you’ll get another appointment through.
Thank you I was at work so I missed the phone call but I sobbed to the voicemail, as soon as I see "missed call from private number" i new what it was...
I know now to wait for another appointment 🤞
And on a plus work are going to be happy I dont have to take a week off at this busy time xxx
Feeling for ya, it's a horrible feeling, June last year I got to the hospital for 7am and at 4.30pm they cancelled mine!! I was heart broken and sobbed, so I feel ur pain, hopefully u will hear something sn and u wont have to wait too long, sending hugs xx
It's awful isn't it but j j ow I'll get there some day, just not anytime soon. Sending hugs xxx
Sending big hugs, In the same boat and it’s awful x x
And on another note thank you for working through these times in the supermarkets, you’ll be making a difference to so many people.
Aww sending hugs back it's not nice at all and knocks you for six but we gotta carry on our time will come one day when covid-19 has gone and is a distant memory,
Aww thank you so much that's lovely. If all the customers could stay calm and be nice (easier said than done I know) but some customers are really rude and need to think we wre actually in the same boat as them just difference is we dont get to isolate as some people who are on pensions or on benefits cant afford to panic buy will still need there essentials.
K hope you get another date soon xxx
I had my preop yesterday and I am praying to the gods that mine does not get cancelled.
Yes I am aware this is a national emergency happening in the world but I am also aware that my condition is deteriorating every single day. It’s a struggle to get out the bed and if this is cancelled I don’t know how much longer I can wait in pain for 
I feel for you so much and hope it is rescheduled as soon as possible! X
I had my pre op on the wednesday on the friday op was cancelled, I really hope it dknt for you it's such a awful feeling.
I'm exactly like you I can feel myself getting worse by the day I'm starting to have even more time of work for it, I'm spending more time on pain relief, more time in bed or on the sofa with a hot water bottle. I struggle to even work most days,
But all we can do is wait it out 😔
I'm wishing you all the luck xxxx
I am I the same boat. Had to wait so long and jump throughout so many hoops and treatments to be finally have a date for operation in May and then this COVID to cancel all surgeries . I have constant bleeding on cerazette and how I can go on whatever many months now waiting for surgery.
That's exactly how I feel
I’m so sorry it must be devastating. I have had 3 endo surgeries & if mine got cancelled I know I would be totally devastated. I hope the op get re scheduled soon & you don’t too long to wait. In the meantime your symptoms are bad ask GP/ gynae how to manage them. I really feel for you & anyone else whose had their ops cancelled xxx
Urgh, I feel your pain so badly. My operation took me 18 months to get, in the end I had grown a tumour the size of an aubergine that luckily wasn't cancer, but had got infected with a bacteria related to Crohns disease! So bloody weird.
Anyway, they cancelled my operation twice. My life was completely on hold, it was mortifying and nearly finished me off mentally. Patronising comments don't help, you know why it's cancel but it doesn't make your life any easier.
It occurred to me the other night in bed my pain injections will be postponed until god knows when. These control my migraine, when they wear off I am left bed-bound with migraine aura that leaves me dizzy and sick. Dreading it.
Th only thing I have taken from any of it is that it's made me way tougher than I could ever imagine. I ended up enduring the unendurable. It's no comfort I am sure, but once you do get your operation, you will value your life so much and get another shot at it all.
In the meantime rant away...xxxx
So sorry to hear that your lap got cancelled, I totally understand your frustration and the fact you feel so emotionally broken. Being so close to getting the help you need and then having it taken away is devastating, it takes so much mental and emotional strength to cope with this disease and sometimes it gets too much. You aren’t selfish, just stressed and worn down by it all. Take care and stay safe in these troubling times.xx
💗
I understand how you feel.
My oldest friend has just been told they cannot continue her cancer treatment because the risk from covid is too high.
She is only 32 and has 2 young children.
This means she will die. Sad beyond words
This is awful, I’m so sorry to hear this.
She’s lucky to have a good friend like you, stay strong xx
Thank you. xx
Omg I'm crying at this 💔 I'm so sorry
I completely understand how frustrated you must feel. I feel so sad and helpless too. Talk care. Hope you get your operation soon. xx
I am so sorry that your surgery has been cancelled! On Thursday my daughter was to have her dead ovary removed following ovarian torsion, and an 8cm endometrioma cyst, as well as any endometrial tissue that he could find. She's already had a hysterectomy in August. On Wednesday her surgery was cancelled and we are devastated so I fully understand your distress. We are now watching incase peritonitis sets in! I hope and pray that this virus situation resolves as quickly as possible and all the surgeries can go ahead!
You will feel better gradually as you adjust to the news and you will carry on, but it is devastating, there's no doubt. All of you girls with endo are strong and don't give in or give up- one of the songs I annoy my daughter with is 'I am woman' by Helen Reddy! A powerful message- listen to it if you can bear to- You are woman and you can do this! Take care and keep safe. 
Sending lots of love 💕. Same thing happened to me and I’ve felt so low ever since. Take care of yourself and don’t feel guilty for feeling all the emotions you need to feel.
I have an operation scheduled for end of june for excision. It couldn't come soon enough for me but I have got my head round the fact that it will be cancelled/postponed until ????who knows???!!!! 😩 so I feel your frustration!!
I feel down and disappointed by it knowing I will have to carry on in pain every day for the foreseeable (plus being housebound with a bad case of fatigue and a lively toddler!!! 😳)
but hey ho that's life and it is completely out of our hands/control! but at the same time I wouldn't fancy an operation at the time of the rapidly spreading and mutating virus....with an already comprised immune system 😞 plus they will need all hands on deck and hospital beds etc.
I hope this all blows over soon and our appts can be rescheduled (but only when 100% safe to do so!) until then try not to stress...what will be will be unfortunately....and stress only makes our condition worse! so....deep breaths, have a good cry, punch a pillow!!! and let all that frustration out!! but most of all keep safe 💕 xx
Me too 😩 I have felt every emotion going xxx
Ohno! Hang on in there! I'm holding onto a 12- 18month wait for a hysterectomy it's so hard but at least you should be first on the list when the start back up again🤞. It's so difficult because if they acted upon every medical issue the way theyve dealt with cov-19 we d all be spring chickens and not without money on sick pay and no jobs but I'm not going into that one ! hopefully if everyone does as they are told and stays in we wont be waiting too long. Meanwhile it's perfect excuse to get a film on and lie in bed taking pain relief with a hot water bottle and feel normal well ish my thoughts are with you stay strong 🎗
My operation was cancelled yesterday too and I’m absolutely devastated. I was waiting for it since March last year. Firstly there was a long waiting list and then when I finally got a date, it was rescheduled three times. I literally can’t cope anymore. If anyone could recommend a hormonal pill that won’t make me put on weight etc, I’d be very grateful!
I am so sorry to hear this. It's the worst feeling I hope your okay, you will get a date or may not be soon but we can all wait together
#endoworriors
Xxx
Post operation!
Operation date! 
operation Friday
Operation time is here 
Has anyone else's endo grown back quickly after operation?
