Hi everyone. I’ll try and make this as clear and concise as possible.
I am wondering whether I have endometriosis or a gastro issue. Everything up until this point, I have researched, read and built up as much info as possible so as to not get fobbed off by professionals and to try and get to the bottom of what’s going on.
Since late Dec 2019, I have been very poorly. I woke up one day and haven’t been the same since. I woke up and had extreme nausea followed by a severe burning sensation in my lower abdomen. I was in pain every time I ate anything no matter how small. The pain came as soon as I would put food in my mouths. The pain was still in my lower abdomen.
This lasted for a few days, completely disappeared for three days and then came back even worse for a few days. It disappeared for two weeks and then came back but didn’t go away.
What I noticed is that it all started the day before my first period started, 5 months after my second baby (I was breastfeeding for the first 5 months).
When I had respite from the burning I then developed hip pain, shoulder tip pain, pain near my Fallopian tubes. I made a pain diary and everything would be cyclical and start before my period and got worse around ovulation but as weeks went by there was no respite.
It’s been almost three months now. I’ve had to be proactive with help from the drs. I’ve seen 9drs and I’m seeing two specialists; a gynaecologist who is useless and a gastroenterologist.
I’ve never suffered with cramps and the pain I experience isn’t cramps but a burning sensation. I’ve been tested by my GP for urine/bladder infections. I’ve had a scan and they said ovaries and womb/Fallopian tube is normal.
I was thinking it might be intestinal or bowel endometriosis but it’s all a bit confusing. My periods are not heavy and some of my symptoms do not match up except for the cyclical pattern. I get awful awful nausea just before my period.
Now to the bit that throws it off. My calprotectin levels are high, I have dark tarry stools and I’ve lost weight and not gaining. My intestine area hurts so bad and I’m in pain whenever I eat. It’s affecting my life . I’ve explored the gastrointestinal route so having an endoscopy soon as well.
Does anyone have similar or know if it’s an indication of endo? I know that to officially know you need a lap but I just wanted to know other people’s thoughts about whether it sounds like endo.
I’m 31 years old and have always had regular periods. When I gave birth to my second child I did have retained placenta. All this happened when I first started my period way after birth. The radiologist was very dismissive without knowing all the details and and doubts there are any issues regarding my reproductive organs. The nausea and pain is new but what makes me question if it’s endo is the calprotectin, dark stools, losing weight and pain when I eat/burning pain.