Need some support

[Singingirish]

Hello ladies, I’m in a huge amount of pain at the moment and it’s really bringing me down. My pain started as cyclical and then became more and more frequent and since January I haven’t had a pain free day. I’m so down at the moment as I’ve only just been diagnosed and I’m finding it all a lot to deal with. If anyone has any advice I’d really appreciate it.

[incrediblesunshine]

Hi hun your not alone I totally understand where you're coming from had a similar few months myself with terrible ovarian pain and multiple visits to A&E it gets emotionally and physically draining when you're in constant pain I find hot baths and meditation can help but everyone's different I hope you feel better soon

[Singingirish in reply to incrediblesunshine]

Thank you so much for responding. I hope you’re not having the same level of pain and are getting some relief. I’m definitely gonna try some more meditation to help

[ali_cupcake]

It’s nearly 3am and I’m awake in agony too! I’ve recently been diagnosed so I completely understand how you feel regarding feeling low and down. If you can try speaking to someone you know about it all. Getting it out in the open to someone you trust can help tremendously and it means they can support you. Another suggestion would be to speak to your GP about how you’re feeling, they might suggest some medication to help with how you’re feeling x

[Singingirish in reply to ali_cupcake]

Thank you so much. I spoke to my gp today and they’ve referred me for counselling so I feel like I’m moving in the right direction x

[gabbiefawn]

Everyone is different but I also find really hot baths, and hot water bottles help. I have started taking cbd oil which takes the edge of the pain and also makes so less anxious about it all.

It’s hard because I know all of us suffering want a normal life but my gp (who’s amazing) said to me “self love, not self destruct” don’t push yourself too much if your in pain. if you need sleep then sleep, your body is physically drained, I know it sounds stupid but try and do things that make you feel better mentally too.

Hope you feel better soon! Xx

[Singingirish in reply to gabbiefawn]

Thank you so much. I think this is something I definitely need to listen to more as, like most people, I’m bad for pushing myself too much when I’m not well.

My hot water bottle is my saviour! I’ve been looking into cbd oil, is there a specific one you would recommend?

Xxx

[gabbiefawn in reply to Singingirish]

I vape mine as I was told it’s a lot better I ordered mine online (vsavi or something) I have a 200mg one but I would advise getting something a little stronger as mine just takes the edge off and not completely gets rid of it. Have a look around online and look at reviews, I hope you’re feeling okay xxx

[Hidden]

Hi hun, sorry to hear about your pain. You're for sure not alone in this, I know how is it like to be awake from pain and feeling exhausted.

I find heating pads along with pain killers help to ease the pain besides taking a lot of rest and not pushing yourself.

Still waiting to have my laparoscopy, but I have the endo symptoms since I was 14 years old.

Sending you lots of love and blessings xxx💛💛

[Singingirish in reply to Hidden]

Thank you so much. I hate knowing other people are in pain, but it does really help to know I’m not alone in this.

Gotta love my hot water bottle and on sooo any painkillers at the mo! Definitely need to rest more, I’m bad for pushing myself too much.

Also waiting for my laparoscopy, I think I’m most scared that they’ll say they don’t find anything and they don’t know what’s causing it.

Lots of love and hugs xxx

[Hidden in reply to Singingirish]

I'm having the same fears, but to be honest everyone here are kind and supportive and giving me hope that I will find answers.

I hope you feel better soon and get all the answers you need.

Fingers crossed for your laparoscopy 🤞🏻🤞🏻

Xxx❤

[RicEndoUK]

Hi Singingirish,

I'm very sorry to hear you are in such pain and are feeling down. As others have said, you are definitely not alone and the people here are so supportive.

If you feel like talking to someone, Endometriosis UK have a free confidential helpline which is staffed by volunteers, all of whom have experience with the condition. You can find the opening hours in the link below:

endometriosis-uk.org/helpline

They also run support groups where you can meet others and talk about how you are feeling. You can see if there is one near you here:

endometriosis-uk.org/find-a...

Take care and keep us updated on how you are.

RicEndoUK

Volunteer Moderator

[Singingirish in reply to RicEndoUK]

Thank you so much! I’m definitely gonna give the helpline a ring, I think it’ll be good to talk to someone whose been through the same thing