Just want to cry and eat organic chocolat... - Endometriosis UK

Endometriosis UK

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Just want to cry and eat organic chocolate since that’s all I’m allowed endo affecting sex life!Suicidal feelings

Afrohair profile image
5 Replies

So me and my partner was about to attempt sex this morning but didn’t end up as my alarm went off to get up well we only did a bit of foreplay so to me it was nothing and when I went to the loo im bleeding again this has caused me embarrassment he hasent mentioned any blood during but it’s getting so bad he Dosent want to have sex with me cause of blood or any mishaps sometimes I don’t even know it’s happened I could be blood free for two days and soon as I have sex I bleed again I was even scared to go back home in case he asks me back to the bedroom cause I don’t want blood everywhere I know some people don’t mind it but my partner thinks it’s dirty being the culture he is im supposed to keep away during these times but that seems to be every day before the pill I only had a week bleed now my symptoms are worse I don’t know wether to stop it’s been two month and I keep having 2 days of no bleed now and again I’m frustrated I’ve been feeling suicidal with all this I haven’t wanted to act on it but it’s affecting me so much and I’m in pain all the time I have to knock myself out with co coddamol I keep telling everyone I’m not in pain and sometimes I’m in denial but my body’s hurting !

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Afrohair
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AllthatGlitters profile image
AllthatGlitters

Hi afrohair reading your post I didn’t want to not reply.

I would say can you go to your GP and talk to him /her about these feelings as a feeling of being suicidal needs to be spoken about/dealt with and maybe professional help from a counsellor. Endometriosis effects us all in different ways and it negatively impacts on our lives, it certainly does mine and you can often feel alone and in pain and not know where to turn to.

Like you I bleed constantly, even on the pill and it’s not normal. I am convinced that something is really wrong with me now and I am waiting to discuss it with my doctor.

My husband is more scared that when we have sex that he is hurting me as i suffer with pain throughout, so the bleeding in your case is controlling your relationship and how you feel about sex and how your partner feels about the blood. What medication do you take? What advice have you been given medically about trying to get the blood to stop.

I am sending you a hug as it’s a difficult disease and only is ladies who are going through it truly know how it feels and effects us every day xx

Afrohair profile image
Afrohair in reply to AllthatGlitters

Thankyou for your support I’ve tried northersdone ?i think that’s the name and menfic acid but none seem to help and gynaecologist seems to have put a different dose on the box he says 2 times a day inside the box it says 4 and he never gives me enough tablets it’s costing me a fortune getting all these prescriptions

AllthatGlitters profile image
AllthatGlitters in reply to Afrohair

I have tried menefemic acid too and it just clots me up so still bleeding.

Is there any way you can go private?

I had to as I was so desperate xx

Afrohair profile image
Afrohair in reply to AllthatGlitters

I’m hoping to see how much it’s going to cost I don’t have any health insurance hoping I can do a payment plan or something but if it comes back after that lap I’ll be screwed cause I’ll still be paying it off x

AllthatGlitters profile image
AllthatGlitters in reply to Afrohair

Yeah I know what you mean as I can’t afford private again. It’s all up to the NHS and I feel they let me down as I was meant to get an appointment for surgery within 3 months due to severity of symptoms. 9 months later and nothing even after chasing them up several times and my doctor doing the same thing 😢

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