Perfect periods to misery in 1 year. Will... - Endometriosis UK

Endometriosis UK

73,852 members53,660 posts

Perfect periods to misery in 1 year. Will I be taken seriously?

budgeroo profile image
1 Reply

Sorry for long post.

I came off the pill (Ovranette, which I'd been on for ~7 years) as I thought it was making my skin bad. I was fine for about 6 months, and then my periods got weird. The time between them was becoming more erratic, and my bleeds lasted longer (10 days as opposed to normal 4-5). I wasn't really worried at this point, I just assumed this was my natural rhythm kicking in.

I experienced period pain for the first time ever aged 26 in December (crazy, huh?) which I actually initially thought was gut pain related to IBS/coeliac disease, as it was new to me. After that, every period was painful and long, to the point where my bleeds were lasting longer than my breaks.

I went on a new pill (Gedarel - supposedly good for skin) which messed up my cycle completely. I bled more, had loads more pain, and had permanent nausea, and was sooo emotional. At one point I bled for 5 weeks continuously. Was a miserable wreck, my work was struggling, using double protection just about cut it..

I stopped Gedarel and was given Noriday and Tranexamic Acid. Doc mentioned Endo at this point, but wanted to see how I progressed. Since then, I have been having breaks from the bleeding, but on average (after 3 months) I bleed for about as many days as I don't, and there seems to be no pattern or predictability. My "Flo" app has stopped predicting my periods because it's that random. I don't know which bleeds are periods, and which are breakthrough bleeds or whatever else is going on.

My pain is pre-, during, and post-bleed, and sometimes randomly through the month. More recently, slight pain with sex, and pelvic pain and bleeding for a few days after. Bowel/rectal pain at same time as bleeding. Sometimes I get cystitis symptoms (but with no detectable infection). Bleeds are varying colours and usually clotted.

Saw doc last week and he has re-prescribed Noriday and said if I feel like I'm not coping with medication alone, that he will refer me to a Gynaecologist to investigate for Endo by surgery.

Is it weird/unusual to go from completely normal/healthy periods, to Endo diagnosis within just 1 year?? Has anyone else experienced this?

Could it be that Ovranette had been holding Endo back all those years?

Will Gynae take me seriously, as my symptoms are still kinda new?

Written by
budgeroo profile image
budgeroo
To view profiles and participate in discussions please or .
Read more about...
1 Reply
Nina1980 profile image
Nina1980

I went from normal periods to having problems in a matter of months. I did however have painful periods but manageable with paracetamol and ibuprofen since I started periods. I knew I had problems when I started to bleed excessively and pain increased and developed IBS symptoms.

Not what you're looking for?

You may also like...

When will we ever be taken seriously 😢

So I seen a new gynae today went through my history explained everything, she was then trying to...
Joely21 profile image

Stupid question but...

Why don't all endo sufferers who aren't TTC on the pill to stop the monthly bleeding? Surely...
Jenn2022 profile image

Mirena Coil for 16 year old girl? Has to be fitted soon :(

Hi, I'm debating going through with the mirena coil and would like some advice from people who've...

Mirena coil, don't be afraid of trying it.

Hello ladies, I hope you are all well? I just thought I would write this post as I have mainly only...

Bowel problems, upcoming hospital appointment & don't know what to do.

After a short period away from this page, I'm back as I feel I have no where else to turn. So...
missm87 profile image

Moderation team

See all
Msunited profile image
MsunitedModerator
LivWilliams27 profile image
LivWilliams27Moderator

Top community tags

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.