Painful penetration and coil: My gynae has... - Endometriosis UK

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Painful penetration and coil

SarahMia227 profile image
5 Replies

My gynae has suggested that I switch from the combined pill, which I've been on since I was 18 (for contraception and endo purposes) for the mirena coil. I've read lots on here about the mirena coil, so I know others have had lots of mixed experiences with it, but I'm willing to try anything at this point!

One of my main symptoms is painful sex, and painful penetration - I find anything larger than a finger very painful. I'm worried about the mirena insertion, for obvious reasons.

Has anyone else had it put in with painful penetration as a symptom? Were there any adjustments the doctor was able to make to make it more comfortable?

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SarahMia227 profile image
SarahMia227
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Christin_a profile image
Christin_a

Hello Sarah

I don't have painful penetration but do pass out and feel really sick at basically every smear or anything that involves a speculum, so I can never drive myself to or from these appointments. So I've got an appointment in a couple of weeks with a gynecologist to ask if they can fit the coil do it under sedation. As I can't handle a smear let alone a coil insertion.

I'll let you know how that conversion goes.

GrittyReads profile image
GrittyReads

In my 50s, as I had found examinations - and more recently sexual penetration - so painful, my consultant arranged for my mirena insertion (and full uterus check) to be done under anaesthetic. I was in my early 50s, and my pains and periods were becoming unbearable after I had been made to stop the pill at 50.

However, I did see the consultant privately, after things had become much worse following a general NHS laparoscopy a few years earlier.

[NB I think the partial excision done in that lap, grew back quickly - as well as them probably missing some hard-to-spot Endo. I would advise all women, with possible endo, to only have an exploratory lap, first ... 'and' try to insist on knowing if they have been checked properly for endo on the bowel or in the pouch of douglas. Many general gynaes are not skilled enough to spot endo in some of the difficult to access areas, which is why things get worse for women after repeated partial laps. If there are any possible problems we should be seen by Endo experts in BSGE Centres, but these are thin on the ground and getting harder to access due to cuts. We can only be referred to BSGE Centres when exploratory laps have found 'difficult to treat' endo, but some gynaes do remove some endo, and we are told that 'should be that'. But when women are not referred to BSGE Centres, because the more difficult endo has not been spotted - or ignored - then things get worse and worse].

I only saw the private consultant for some initial consultations, but he was wonderful. He then arranged for the insertion of the mirena to be done, under anaesthetic, on the NHS, and I was pain-free for over 5 blissful years, and when the mirena was eventually removed I was post-menopause, and all has continued to be well, since.

BHillRossi profile image
BHillRossi

Hi Sarah.

I suffer the same symptoms. Unfortunately, it took two attempts at having the coil fitted as the first time I completely freaked out and cried hysterically as the speculum used was much bigger than one they use for smears. The doctor was also not sympathetic despite suffering with endo herself!

Second attempt I had to have my partner with me to calm me down, and a lot of diazapam. It wasn't a good experience and the thought of having it replaced terrifies me. I wish I had it done under anaesthetic.

I don't mean to scare you, this was just my personal experience.

SarahMia227 profile image
SarahMia227 in reply to BHillRossi

My attempt last week also failed - I found it far too painful and I had to stop. I'm going to try later this week and see if I can manage it a second time, since they've already measured my womb so it just needs to go in now. Fingers crossed!

SarahMia227 profile image
SarahMia227

Just in case anyone comes back to look at this, I thought I'd post an update: I went back the following week and saw a nurse this time, rather than the consultant from the first time.

It was such a different experience, she was really kind and managed to get it in in under 5 minutes. It was still very painful, but manageable. Hoping now it will help with my endo!

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