HELP.. Advice needed: So I have finally got... - Endometriosis UK

Endometriosis UK

72,905 members53,261 posts

HELP.. Advice needed

ch2018 profile image
9 Replies

So I have finally got my date for surgery and have recently been to my ERA session.

I am having a laparotomy as I have a 10cm cyst on one ovary and both a 6 and 15cm cyst on my other ovary. Endo is completely blocking my tubes and I have been told to expect them to be removed. I also have endo in my bladder and somewhere that begins with the letter u but I can't remember what it's called 🤦‍♀️. This means I will have at least 2 surgeons working on me in my operation.

I have been told my estimated recovery time will be about 2-4 weeks which I am totally confused about as I thought it would take much longer.

Has any one got any advice?

Thanks

C x

Written by
ch2018 profile image
ch2018
To view profiles and participate in discussions please or .
Read more about...
9 Replies
Afrohair profile image
Afrohair

So sorry you are going through this sorry I can’t be much help I’ve only just found out I have endo and got a scan today

ch2018 profile image
ch2018 in reply toAfrohair

Hi I wish you all the best for today and hope that you get results quickly. What scan are you having?

Afrohair profile image
Afrohair in reply toch2018

It’s a pelvic scan and of my ovaries I know they can’t always tell on scans but I hope their knowledgable to pick up something as my ovary has been hurting during ovulation I never get that till now

Mara_Simba profile image
Mara_Simba

I had similar surgery earlier in the year. I was only in hospital 2 nights then I was officially off work for 3-5 weeks but in the last few weeks I was able to work from home. If they are able to do keyhole surgery, this is the best for recovery time.

ch2018 profile image
ch2018 in reply toMara_Simba

Did you have keyhole? My gynae has already said I can't have it as the cysts they are removing are too big and because of how much endo is in my tubes

Mara_Simba profile image
Mara_Simba in reply toch2018

Yes I did have keyhole but my main pain was internal, the actual scars in the skin weren't a problem. Depending on your job, I'd say expect a 4-6 weeks recovery. I felt worse on the painkillers than with the pain and once I got off them I was mentally able to do a lot more. It's important to move around and walk etc during the recovery time which makes it pass by quicker, at least you are not bed-ridden.

Hilary1970 profile image
Hilary1970

That sounds about right, I have previously had surgery for extensive Endo involving the bowel. Was back at work after 4 weeks but probably depends on your lifestyle/work life. Pain was manageable. (And felt like a new woman afterwards😊....good luck💕

Emmyh80s profile image
Emmyh80s

Everyone is different, just be prepared to heal at ur own pace. I had laparoscopic surgery for remove one tube but ended up having both removed and they found extension endometriosis. I thought I’d be off 2 weeks that’s all the surgeon signed me off for but actually had to have 7 weeks as I just didn’t feel ready to go back and was still experiencing discomfort. I still don’t feel 100% and it will be 10 weeks tomorrow since my surgery.

ch2018 profile image
ch2018

Thank you everyone for your replies. The way that I see it is that everyone's story differs so much and even if people have similar problems it still varies a lot. So it is just a matter of seeing how I feel I guess. But it always good to hear other ladies stories

X

Not what you're looking for?

You may also like...

Advice - cysts and TTC

Just posting to see if anyone has been in the same position or can offer any advice! I had...
Amy2106 profile image

Advice on one ovary being removed

Hi. I've been to see my gynaecologist this morning. A year after diagnosed with grade 4 endo and...
Sammie721 profile image

After one ovary removed help urgently needed please

hello ladies. I've not had endo diagnosed but ik reasonable sure that I have it. Little history...
ElmoFluff profile image

Advice please...

Hello my name is Aimee and I am 23 years old. I had been suffering abdominal pain for sometime (I...
Aimeebish1992 profile image

New to this! Help & advice please

I am yet to be officially diagnosed. Had constant left sided pelvic pain and constant back ache,...
malred8 profile image

Moderation team

See all

Top community tags

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.