Please help!!: I have been in pain for... - Endometriosis UK

Endometriosis UK

50,869 members41,902 posts

Please help!!


I have been in pain for about eight months now and I feel like I am getting no where! My symptoms are...back pain, leg pain, pelvic pain (very bad), right hand side stomach pain, constipation, tiredness, bloating and really heaving bleeding during my period with clots. I finally got referred to a gyno last month who told me I have IBS and I should drink more water and that's all. After much persuasion, she scanned me and found I had a cyst on my right ovary. I was told it was small and nothing to worry about and to come back in 6 weeks. I have recently went back on cerazette pill (of my own doing) which has helped with the pain. Does this sound like endo?? Should I be worried about my cyst?? Please help! Thanks!

7 Replies

Hi Hun,

That's what I was like, I have 2 cysts on my right ovary and the hospital won't do anything but just monitor them. The symptoms you have is very much like I had just without the leg pain.

Have you thought of going to Arrowe park to see a doctor there I went there and I can not fault the doctor I saw

Hope it he's

LauraLou x

Thanks for your reply! Have you since been diagnosed with endo?? Xx

I have been diagnosed with endo years ago think it was 2000. But only had a little amount of it and then had another lap 2009 and got referred to Arrowe park because it had got worse :-( xx

Should I be worried about me cyst? Have u been given any information about yours? She literally told me I had a cyst...nothing to worry about, put your clothes on and come back in six weeks. Then she left the room xx

From my experience your symptoms are very similar to my own the biggest problem is that endometriosis can only be diagnosed via a laparoscopy which is quite big and has its risks i was very lucky in that from actually asking for pain relief to being formally diagnosed was less than a year but i had suffered at home self medicating for years if ur not happy you are entitled to seek a second opinion don't suffer in silence complaining was the best thing i ever did keep going back to your gp till u feel heard xxx

I personally think you should ask for a referral to a different consultant. How ridiculous to diagnose IBS when even non-medical people are well aware that endo can cause IBS like symptoms and that endo can only be diagnosed via a laparoscopy. Even if she did suspect IBS, why is she not referring you onwards for further investigations in that direction. I find it worrying that a gynae would not make the connection between IBS and endo and just tell you to drink more water!

My endo got diagnosed because, like you, I presented with 'IBS symptoms' and also severe abdominal pain linked to monthlies but gradually invading all the time. My GP sent me for a colonoscopy with a colorectal consultant to rule out anything there - that was clear but the consultant said my bowel was very out of shape and suspected endo. I then had a pelvic scan which revealed ovarian cysts. I then had laparoscopy which confirmed that, yes, both symptoms were caused by endo.

It is all well and good saying the cyst is small but as you are in pain, it is not good to just leave you to get on with it.

This is why I strongly believe that a referral should be made to an endo specialist rather than a gynae where endo is suspected. I would go back and chat to you GP and see if you can get a referral to an endo specialist. There are some gynaes who have chosen endo as their specialism but most tend to specialise in fertility, hormones, period problems, hysterectomies etc with endo being a string to their bow. The one you saw clearly had endo right at the end of that bow as their speciality I would think.

An endo specialist is obviously someone who has trained as a gynaecologist but gone onto specialise in endo. I so hope you get the referral you deserve. x

Thank you for responding it's so nice to know your not the only one!! I don't even know what the right answer is anymore I just know I can't cope with this for much longer x

You may also like...