Help , advice & support ❤️

[K-Endo]

Hello ladies,

I am 2 days post lap after having a patch of endo removed. I have found the whole thing very emotional and exhausting both mentally and physically. I’ve found the gas ( used to blow your stomach up during the op) to be more painful and un-comfortable then the 3 incisions I’ve come away with. I can barely breath , pain through my back , shoulders and chest 😣. I’ve been drinking peppermint tea but it doesn’t seem to be shifting yet . I waited 13 months for the op after being continually told my symptoms where ‘just’ my IBS. So to have found out it was endo too was a mixture of both relief and upset. Like so many other posts I have read I was disappointed with the after care; I wasn’t told until the next day how my surgery had gone(so I had no idea if they had found anything or not) I was told at my ‘discharge brief’ there were patches of endo that had to be removed the gynaecologist ( male ) put it to me very bluntly and you could see the female junior next to him offering a smile and squirming(that was not sexiest lol but the genuine situation) . The things he was saying and the way he put it out I just feel was so direct and heartless he said off the cuff “you wouldn’t be considered for IVF as you already have a child”. That was the only ‘fertility’ remark I was given and said I would need to go back on the contraceptive pill to manage the pain. I wouldn’t even say it was all matter of fact it was just very direct and quite odd. There was no other aftercare advice given so I’m presuming I make an appt with my GP? I really don’t mean to sound dramatic but I think the aftercare is appalling for a condition that is potentially life long?

Just feeling upset and overwhelmed.

[K-Endo]

I have now looked into seeing a private gynaecologist after having a very pointless chat with a GP via phone. Has anyone else gone private since having a laparoscopy? I haven’t even been offered a post-op appointment so really just feeling quite fed up with the NHS

[Catness in reply to K-Endo]

Hey. I’m sorry to hear how badly you’ve been treated post/op.

I had my 6th lap in March and can confirm the trapped gas pain was the worst thing about initial recovery and nothing would help with it. It started to lessen each day however and after a week it was gone.

I have gone private on a couple of ops and NHS on a few and private is BY FAR miles above NHS. Far more compassionate and caring, expertise and time given to patients is far better - in my experience there’s really no comparison.

How are you feeling today? Xxx

[K-Endo in reply to Catness]

Thank you I really appreciate the reply ☀️

Yes I’m experiencing that too it’s starting to ease off more and more but I’m still finding it difficult to sleep it’s almost compressed on my chest at the moment.

Oh I’m sorry to hear you’ve had such a difficult time with it. Like I said the after care has just being non-existent. I know this may sound silly but once you have had endometriosis removed are you now classed as having endometriosis as a diagnosis? And once you have it you have it for life so to speak? It’s even questions like this that I have being un—able to speak to anyone about.

Thank you again ❤️

[Catness in reply to K-Endo]

I think that depends on your consultant whether they consider you ‘cured’ or not. I still have a small patch in my bowel so I guess I still have it but to a lesser extent 🤔 sorry I can’t be very helpful with that! Have you looked at the endo resolved website? The author of the website Carolyn Levett also wrote a book called ‘recipes and diet advice for endometriosis’ which I found to be helpful xxx

[K-Endo in reply to Catness]

Not to worry I’m hoping I will get some answers from somewhere soon 🤞🏼. I’ve just looked into it thank you so much for recommending it ; I’ve ordered the book! Really grateful , thank you xx