What will be next

[Mollya2401]

Hi guys I’m quite new here I’m 16 years old and have my diagnostic lap in 19 days, my problems started years ago I had my first period at 12 and was put on the pill at 13 because the pain and heaviness. 10 months ago my problems began to rapidly get worse just as I was supposed to return to school after summer to begin my year of studying for higher exams I was off for 3 weeks at the once and missed a lot of school work! I went to docs got referred to gynae and seen him December had scans etc to check for PCOS but everything was clear. When I first went to docs 10 months ago they advised me to get the contraceptive implant to help with pain until, fortunately I had no period at all the whole 9 months I had it but the side effects drained me physically and mentally I gained around 2 stone, my mental health took a massive plunge which may also be due to still being in excruciating pain everyday since January as the rod seemed to just wear off now I have my appointment through and I know I should be happy but I’m just worried incase nothing is found and I am just discharged. My attendance in school this year was around 40% due to being so sore and as of today I have completely finished all my exams, now needing certain grades for college I’m just hoping anything is found so i can start any sort of pain management. Sorry for the long post but does anyone have any positive stories!!

[EndoJaz]

Hiya

I was in the same position as you and missed so much school due to period agony and heavy bleeding...I was put on the pill at 15 which helped a bit but by that time it was too late to catch up...nobody understood and I think they just thought I was a lazy teenager who didnt want to go to school. I am 44 now and still suffering with all this. I only got diagnosed 3 years ago. I really hope they get to the bottom of your pain etc and then you can plan what steps to take next. I hope the school is supportive, I dont think I ever spoke to any teachers about my problems so never got any help.. even my Mum didnt understand it as she was fine with her periods...no pain at all! I remember begging her to take me for an operation to stop the pain but she told me I was being silly! At least you are having a lap...that is a big stage to get too. Get some peppermint tea for the shoulder pain after and take a pillow for the ride home....I wish you the very best of luck. X

[Mollya2401 in reply to EndoJaz]

Thank you so much for the reply, I can’t imagine what u have been through over the years trying to cope with the pain. Luckily my mum is very supportive as she always has had issues to just not this which is what’s so confusing about it, the school have also been very helpful along the way as I think most of my teachers just wanted to get me through the year really. I definitely understand the lazy teenager part! I think a lot of my teachers thought that was me until I explained my gynae thinks it’s endo and I’ve to get lap to find out, I’m also very interested in my science so my chemistry and biology teachers definitely understood how serious this was. I wish you all the best in the future trying to cope with this!x

[EndoJaz in reply to Mollya2401]

Thats good that you are getting support..my mum passed away before I had my diagnosis but I wish I could have explained to her that it was real. You are very lucky to have an understanding network. It just seems to consume your life but hopefully you will get a positive outcome from this. Take care x

[HollyMaria]

I get what you been going through. My pains started at 16, I’m 23 now and they’re worse than ever. But I would strongly suggest when you see your consultant that you DEMAND an MRI scan. An ultrasound scan will not pick anything up accurately or at all. If you feel something isn’t right then don’t Ignore it! It will make you miss out on your teen years like I did. I’d also say that the best thing you could do is have a laparoscopy operation, it’s simple short operation, keyhole surgery... they will be able to see inside you properly and check everywhere.

Keep taking good pain medicine to help you through the flare ups and be firm with your doctors!