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Endometriosis UK
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Pain in hips?

Me again! I just wanted to ask if many of you have pain in your hips? I’ve had a lot of pain in my pelvis in general - shooting pains mainly - but I get so much pain in my hips and around the bone (not sure if they count as hip or pelvic bone 😅) and that doesn’t help when it comes to walking around and sitting down for a long time. It’s frustrating when I’m in bed too because I’m most comfortable sleeping on my side but can’t. Sadly, Tramadol isn’t helping to get rid of the pain - just dull it slightly but it is still rather agonising 99% of the time

Sorry about the rambling but thank you in advance 💛

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Hello there!

You're not alone in this, I have this kind of pain in my hip while sleeping (same as you feeling comfortable on my side ) and pain killers don't seem to help a lot. I just wait till it disappears by itself 😣

Sorry for the pain you are having & wish I could give you some advice.

Sending hugs xxx💛

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That makes me feel better - half the time I feel like what I’m going through is just me and not others which is annoying and just depressing. I think that comes through so many years of being basically told my pain was nothing and all was well 🤷🏻‍♀️

Hugs are definitely wanted and very appreciated. Thank you xx

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Yep! I was thinking the same and feeling depressed and sometimes jealous from my friends when seeing them on their period and acting normally 😂

No problem hun and I really hope you find relief soon xx

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I have Endometreosis in the bowel as well as my ovaries and also have fibromyalgia. So I am not sure myself if it is the fibromyalgia or the endometriosis. However it is like a shooting pain and sometimes burning and it’s difficult to hit for short amount of time on hard surfaces like chairs etc

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Goodness! I’m sorry you have to deal with that! Xx

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Hi Lofty,

I can understand the hip pain your getting. I too have suffered with this since March. I was stood at work and suddenly something in my lower back to the right side pinged and it hurt to move in certain positions. It was uncomfortable walking because it felt like my backside was going to drop on the floor but I also started getting pains in my hips and shooting down my thighs. I found a the body bottle in Argos. It's a long thin hot water bottle, I'm able to wrap it round my hip and leg. This helps especially during the night, ig heat soothes you that might be a good idea. I'm taking tramadol, paracetamol, narproxine and oramorph and I'm only pain free when I'm still. As soon as I start moving the pain starts and just gets worse (even with all the pain meds) but they do dull the pain slightly.

Ramble away, it's not a problem. Your not on your own and it's nice to all with others who have more of an understanding of what your going through.

Take care

Ria x

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I might see if I can find one of those bottles but I’m not allowed them at work which sucks 😭 xx

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I have purchased that water bottle its 20pounds. But I find it I cant use it under my clothing as it's too bulky but I do use it when I get shoulder pains and back pain. You can use heat patches I noticed the superdrug brand is good for temp pain. But yes I too also get the exact same pain in all those areas.

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I’ve not tried the Superdrug ones. I tend to just buy the heat patches in Savers as they’re 2 for a £1. That hot water bottle costs me basically my day’s wages 😱 xx

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Yes you get 2 for 2pounds. The ones in the pound store are slightly better in terms that it really does give proper heat.. but really painful when you remove it. other than that water bottles have helped me a lot on the long run especially bedtime. yes I wouldn't recommend you buying the body water bottle because it's slightly not practical as in you can not fill up a lot of water because it doesn't sit around the waist as it should. it's more ideal if your lying in bed or sitting. x

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hi,I get this every 3months which is so agonizing I end up in hospital for a week put on morphine and pain killers to ease the pain. Its so painful it feels like my whole stomach is going to burst open, the pain is all over my abdominal area and pelvis downward. They say it's a flare up of endometriosis pain hence I been admitted 7 times for 1 half stay at the hospital put on high dose of pain killers to see the pain down.

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Oh goodness! I’m sorry you have to go through all that! Xx

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I am much more stronger than before as I just recently finished receiving counselling sessions to help me cope with all this diagnoses, mentally and emotionally. But I am now much more of a stronger person than I was back in September 2018.

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I’m really glad to hear that for you. I’m waiting counselling thanks to my depression but could be w few more months yet before hearing anything. Knowing I have to wait so long for a diagnosis is really taking its toll on me - could be another 3 months before I even hear about a lap date xx

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ahh I'm sorry you still waiting to be seen by a counsellor. I was given the detail through my workplace as I told them I needed support emotionally and mentally. They gave me a employer assistance leaflet which provide free counselling sessions on all types of area, etc. I called them and within the first telephone consultation they offered me counsellor.

Have you had a surgery? I just recently referred myself to a different hospital as the hospital I am in havent got any surgery date for the next 6weeks I have been waiting since December. The new referral hospital will give me a surgery date within 10weeks. I researched within the bsge sites.

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I’m waiting for my diagnostic lap. I could be waiting another 3 months just to hear about a date. Issue is, my hospital is listed on the bsge website and I was lucky because my consultant is one of the two listed on there. I’ve said i can take things short notice but looks like I am doomed to sufder xx

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Awww your very lucky, my hospital wasnt but we have a specialist gynaecology unit which is why I was diagnosed within 3 days of getting pain. I have more hope in a bsge hospital than a hospital which doesn't have this sort of centre. Hopefully we dont have to wait long.xx

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Hip/groin pain is my main symptom. I’ve just asked to be referred for s second opinion on the cause of it as my current specialist says it’s not related, but the endo nurse with another specialist says it’s common and can be due to scarring pulling on stuff. Tramadol helped me but I got such a comedown, so now I’m on amytriptoline and the pill (the pill was just to prove it was gynae related) and physio because my adductor is weak from not being able to walk. iit seems to be working for now but I can’t tell you which part 😆 but I’ve not had to use my walking stick this month so far

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I’ve only got the next 2 days covered with Tramadol and then I’m off it and I have no idea how I’m going to cope. I can’t go to the drs until next week either.

I’m glad you’re making progress! Hopefully it continues to remain positive for you! Xx

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I spoke too soon. I came on and I’m now in bed unable to stand 😬

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Oh no! If it makes you feel better, I’m at work in rather a LOT of pain and begging for my bed but cannot leave for another 3 hours xx

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I suffer on and off with hip issues, more an ache or sudden stitch like pain, boy it hurts. I was told by the endo specialist it wasn't related, (I've had no physical checks mind) so was referred to physio instead, which didn't help and told I had IBS. I have endometriosis in the pouch of Douglas which was picked up when I had an ectopic pregnancy. Every time I go to the GP with pelvic issues and started getting water infections, never suffered before, my endo is never mentioned and I'm given meds for constipation or referred to physio...hip issues still there though and I've given up as I feel I'm wasting the dr's time. 🙄

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My pain is quite similar to that in my hips. It is certainly frustrating that endo symptoms tend to be passed off as something else. For so many years I was told that any stomach issues were IBS, that my painful periods were normal and the constant lightheaded feeling I’ve had for 3+ years was migraines (I know how migraines feel and I sure haven’t had them constantly for 3+ years) All of it links in with endo symptoms so I’m hoping to get a diagnosis soon enough when i have my diagnostic lap xx

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It was pain in my hips that got my doctor to look into endometriosis after they misdiagnosed me with a pelvic infection. Really bad shooting pains across both hip bones that doesn't seem to get better with pain killers. I've had my laparoscopy and the pain in my hips is still there along with some other pelvic aches,it made me wonder whether it is something else because nobody else I spoke to had the hip pain so in a weird way I'm glad to see others have it too so I'm not going insane!

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I feel like that. I’m always feeling like I have to second guess my pain because I worry that other people don’t have it. The pain is definitely and considerably worse when I have my “period” (I’m on the pill) but it remains with me for the rest of the time as well. I’m not sure whether it is pain from nerves or if it is something else or what... 🤷🏻‍♀️😅 xx

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Hiya again.. yes all my pain is right sided and that includes the hip. Dr said maybe muskoskletal problem but it seems to be all tied in to the endo. Sleeping positions are uncomfortable. Just want this all to go away but as appt cancelled until Aug, looks like a long wait..to make it worse a car rammed into the back of mine yest which has now hurt my back and jolted my tummy so now just feel like crying cos I cant deal with all this crap! 😫x

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Oh my god, are you okay?! That was definitely not what you needed. A lot of my hip pain is on the left but it is quite commonly on both sides for me so 🤷🏻‍♀️ I’m waiting for my diagnostic lap but heard nothing so utterly in the dark about how much longer which isn’t great xx

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I will survive...we have to. Make sure u make the most of your drs appt next week and get the help u need regarding work. Xx

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I’m going to try. I always write lists and take those to the drs so will make sure everything is written down. My big boss at work is honestly awful and doesn’t care about how I’m feeling so not much drs can do 🤷🏻‍♀️ Xx

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Make sure u r on the cancellation list for the lap as I thought I was for my hyst but when I actually rang the hosp they said I wasnt!

Good luck x

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I’m double checking that this afternoon as I had asked to be xx

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Hugs. Pain sucks and people fobbing you off sucks even more. We all get it and you are not alone!!!

If you want some good reading/education to arm yourself with check out Nancy’s Nook on Facebook. Feel like my eyes have been opened. Good luck.

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Thank you - hugs back to you too! 🤗 I might just do that, thank you 😊 xx

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I spent the best part of last year having MRI Scans / Cortisone Injections into my hips and being told to do physio .... Until one rheumatologist didn’t like the look of my abdomen and sent me for a ultrasound scan.... hello 12 cm endometrioma on the right side! Only then did I find an amazing Consultant Gynaecologist ( paid to see him rather than wait another 12 weeks for a referral) he confirmed stage 4 Endometriosis and scheduled me in for surgery. Blood tests done by him indicated possible ovarian cancer , the wait for the CT was probably the longest 2 weeks of my life. Luckily all it revealed was more extensive endometriosis. He said the pain I was experiencing was likely due to the weight of the cysts on my spinal nerves. I had intense sciatic pain that woke me in the night, went down both legs and felt like a spear going through my buttock and poking out my lower abdomen. It was so concentrated in my hips/ legs / back it gave no indication that the problem was gynaecological. I had / still do have weakness and achy legs , struggle to walk or stand for long periods etc

Nerves once bruised or damaged can take up to 2 years to repair so I’m hoping this is something that will improve. Knee pillows have been a staple for me, I’m currently awaiting more surgery and also can’t lay on my right side at the moment - raising the knees takes the pressure off the pelvis and I find it much more comfortable.

Deep freeze spray alternated with hot water bottles also helps. Good luck ☺️ Xxx

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You’ve certainly been through it! I’m sorry you’ve had to deal with all that!

I’ll definitely try that - I’ve always got heat on me (though, sadly, only rarely when at work as I’m not allowed hot water bottles) as I tell myself it helps (it probably does just very minutely. Thank you xx

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I was going to ask a similar question! Our pain is slightly different I think though, mine feel really tight, as if I've walked too far or done a new exercise and the pain radiates down the tops of my legs. I thought maybe mine was due to me hunching up in pain, I was thinking of trying some yoga moves to see if it loosens them, will let you know if I find anything!

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Yoga is good for stretching out muscles. Up until maybe 3-4 months ago, I did yoga every night but I’m in just too much pain now xx

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I was getting really bad pain in my Hips and pubic bone, which my Doctor insisted was pain from Endo! I asked if I could have an X-ray and it came back that I have Hip Impingement and a Labral tear! But strangely my hip pain always flares up with my periods 🤷🏻‍♀️ Hope you get to the bottom of what’s causing your pain! xx

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Thank you! Me too. I keep trying to get through to admissions to try and get a time frame for when my diagnostic lap can be done (hopefully I’ll get answers then) but no luck 🙃 xx

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Hi,

I have TERRIBLE trouble with my hips. It’s always been one of my worst symptoms. I have just had to attend a 6 week physio course but my left hip has got worse since I started Prostap injections.

If I lie on my back on the floor, I can’t lift my left leg as it feels so heavy! They said it’s because the core muscle has stopped working so doesn’t hold everything in place?! When your body is in chronic pain, your muscles start to work differently and it causes certain muscles to stop working at all. They’ve said once my core muscle is strengthened my hip pain should improve. We’ll see....

Sorry probably not much help. I also take tramadol daily. A bath helps a bit so maybe try a heat pad or something?

Good Luck! X

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Heat is my best friend in the hopes that it will do something. Other than that, I think we’re all a bit stuck xx

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Is the hip pain coming from your back? Sometimes back issues manifest in this way.

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I don’t think it is, no xx

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I do! I feel like my hips are getting stabbed and spasming at the same time. I haven’t been able to go to school Bc I can’t sit for a long time Bc I get EXTREME pain in my hips and back. I’m not allowed to take pain killers Bc I damaged my liver a little from taking to much so I smoke hemp, and I used CBD oil and CBD cream and it soothes it but it still REALLY hurts. God I thought I was alone on this too so thank you for writing this but I’m sorry you’re in pain :(

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It certainly sucks, doesn’t it. 😭 xx

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Yes it does 😭

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I have joined today due to having the same pain, as you are describing. Obviously I don't have answers yet, but just wanted to say that you are not alone and I hope that you can get some good advice on here x

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Thank you so much. I hope you get your answers soon xx

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