Hip pain and pain spreading?

[Tiredandfedupofpain]

Does anyone else get extreme pain in their hip? It feels like it’s your bone. I know I don’t make much sense but this is one of the things that I’m struggling with. I have suspected endo I’m awaiting laparoscopy the pain has always been primarily on my right side. I am now receiving the zoledex injection (I’m in my first month) but last few week my pain seems to be spreading to my left side the whole stabbing etc. Has anyone else had this also?

[Purple_Badgers]

Hi, FedUp! It’s so exhausting, isn’t it? I get some crazy hip pains too, mainly right hand side, that cause me to limp & make it hard to get comfortable to sleep. Feels like something’s broken or dislocated or just very beaten up! Also seems to link with pain in lower back/bum, groin, thighs. And I seem to get numbness or pins n needles very easily in right leg too… I guess that endo is pressing on the nerves in that whole area?? Hopefully your lap will show up where your pain is coming from & they’ll either treat it or come up with a plan for treating. Good luck!

[Arty09 in reply to Purple_Badgers]

This is similar to me and physio has helped. Had surgery last year and had more endo on right pelvic side wall explaining all my right sided pain. Pain down the legs I've found to be adeno related. It's rubbish I can sympathise! Xx

[Arty09]

Hi there, yes I have struggled a lot with this. It has improved after excision surgery but the main thing that has helped has been pelvic health physio. This has to be with someone specialised who understands endo and pelvic floor dysfunction etc. (I went to a general physio and it was no help).In my case the endo and adeno causing me lots of pain caused muscles to tighten, shorten and I would get spasms etc. Was even told I had one shorter leg as things got so distorted! And was walking with a limp. Physio helped massively. If cost is an issue there is a book called 'heal pelvic pain' which has lots of advice and exercises. No doubt endo is the culprit but the pain has such a knock-on effect on our anatomy. I have to be mindful of stretching and resting and my gp prescribed muscle relaxants which helped a lot too. Hope this is helpful! Xx

[TheresaIH]

Hi there, first time posting. I am also awaiting a formal diagnosis (specialist appointment in December), can totally relate to this post. My pain is predominantly right sided, really deep in the pelvis but almost feels like it’s my hip bones. When it flares it’s spread through the entire right side of my hip, pelvis, lower back and feels like my thigh is burning, it restricts my normal range of movement and I often struggle putting on socks and pants (I’m 39 FGS, not 89!). The last flare sent my lower back into spasm and I ended up on diazepam for a few days.I guess the reason I posted is because I feel really alone in this, and I wanted to reassure you that you aren’t alone, as the other posts will make you see. Management of this is clearly going to be very trial and error for me as Zoladex seemed a bit scary for me. How did you come to that as your option, if you don’t mind me asking?

[claudia_91 Moderator Endometriosis UK in reply to TheresaIH]

Hi TheresalH

Welcome to the community!

Sorry to hear about the debilitating pain you're experiencing. We offer support with getting diagnosed with endo and the treatments available to you, on our website. You might find it useful to read these pages: endometriosis-uk.org/gettin...

endometriosis-uk.org/endome...

If you have any questions, or require further support, then please get in touch 😊

[TheresaIH in reply to claudia_91]

Thank you so much ❤️

[Tiredandfedupofpain in reply to TheresaIH]

That pretty much sums up some of my symptoms and honestly it really does suck! I agree also that sometimes it feels like you are completely alone but I have read so many posts on here and it is very clear that we are on big endo army and it’s just unfortunate things take so long to diagnose and treat but we are definitely not alone.I ended up on zoledex simply because as awful as this is to say i was in hospital few weeks back as my pain was unbelievable and my options were either have the injection or go home with no help at all! So I was desperate and basically said I would try anything to try and ease the pain. I am now 18days in and I will be honest I’m starting to feel a slight difference and feel bit better in myself. I’ve not been eating properly as I had been feeling constantly sick but been doing bit better last couple of days.

I hope you get some answers soon x

[claudia_91 Moderator Endometriosis UK]

Hi Tiredandfedupofpain

I'm sorry you're experiencing this. Like the other posters, I have experienced this pain going right into the hip bone too. The suggestion from Arty09 to try pelvic health physio is a good one.

In terms of your treatment plan, we have some brilliant information on our website which you might find useful in terms of Zoladex and any potential side effects: endometriosis-uk.org/endome...

Remember to discuss this with your GP or gynaecologist if you are unsure. Hope your pain starts to ease soon, take care 😊