First time poster here. I signed up a few years back and have now come to a time where I’m not quite sure what to do. I feel maybe some of your experiences or words of advice may bring some much needed inspiration and boost of willpower?
So long story short, about 4 years ago, I started experiencing endometriosis like symptons. My sister had had it few years before and it sounded like my mum did too when she was younger.
After a battle with my GP I finally had a diagnostic laparoscopy in December.
I was diagnosed with stage 3-4 endometriosis on the day by the surgeon. A relief that I finally had a definite answer but devastating as there isn’t a cure. I thought he had cleared it and advised me to start trying for a baby, only to find a few weeks later in his follow up letter that a lot of it still remained between my uterus and rectum.
I’ve just had my follow up with a colleague of my surgeon who basically gave me 2 options: go back on the pill to manage the pain and have additional surgery or if I want children to book in with my GP to be referred to a fertility clinic to discuss IVF.
Devastated is an understatement. I feel so down, so lost and not sure what to do. Every month that goes by the pain returns and gets worse, I feel like the surgery was a waste and can’t bare the thought of going through this for the rest of my life.
Has anyone had further surgery on their rectum? Or know much about the risks or effectiveness?
The doctor mentioned I’d get a referral to an Oxford specialist clinic? Which they could give me if I want it...I was just so focused on the fertility sides of things we didn’t really talk over the further surgery, but I’m now starting to feel like maybe I need to try it before the endometriosis has the chance to get worse and cause further damage in that area...
Sorry for such a long post and thanks for reading.