I've been scouring forums for days trying to find answers but I'm at a loss. This is a fairly long story so apologies in advance!
5 years ago I started getting recurrent UTI'S once a month, the doctor's would give me antibiotics for a week & send me on my way. After maybe a year of this they started to get more frequent like every other week. Then the urine samples we're coming back with no infection the doctor's still just gave me antibiotics which of course didn't do anything. We done swab tests all normal, blood tests all normal eventually they reffered me to a urologist. They did an ultrasound on my kidneys all normal. They done a rigid cystoscopy all normal joy! They then gave me antibiotics & told me to take one after sex even after me persistantly telling them it wasn't related to sex. I went back again & they told me to take 1 antibiotic a day for 6 months. This done nothing by this point the pain is weekly but I've worked out if i sit on a hot water bottle the pain goes in a couple of hours. So I gave up with the doctors & learnt to live with the pain.
Fast forward to 2019 the pain has escalated & I now have the following symptoms:
Constant need to urinate
Lower back pain
Pelvic pain belly button to opening of vagina like my organs are being pulled down
Blood in my urine everyday
Pain during sex
So I had my nexplanon implant taken out which I have had for 7 years thinking maybe it's that. The pain dissapeared for 2 weeks wahoo! I started taking loestrin. The pain came back with a vengence i can't walk the pain is so severe i can literally sit on the toilet for hours with just dribbles of urine coming out. So I hightailed it to the doctor's. They gave me antibiotics & signed me off work. Antibiotics didn't touch it & the urine sample came back normal apart from the fact there's blood in the urine. Blood tests normal, swab tests normal. Doctor is confused! So I've been referred to a gynecologist & booked in for an ultrasound on the cervix/womb area. They've signed me off work till the 4th March & given me co-codamol to take. The gp said it could possibly be endometriosis but she's not sure. I'm awaiting results of a smear test. I'm 25 been with my husband for 7 years & live in the UK
Has anybody been through anything like this?? I feel like a crazy person because every test is normal I also feel super guilty for not being at work as some of the day I'm fine & other times I can't move. Just knowing I'm not alone would be a great help it's really starting to affect my mental health
Thank you if you took the time to read all this!!