Endometriosis in pregnancy

[Endomamma]

Hello , im new here and really need advice.

Im 26 weeks pregnant and have been battling with endometriosis and adonomyosis for 2 years and now im finally pregnant...my doctors keep saying " you cant possibly be in pain due to endometriosis and adonomyosis as pregnancy eliminates it.....please please has anyone else been or are in this position??? I have PGP too and i really am so stuck with pain relief that i can safely take due to pregnancy, i was on meloxicam prior to pregnancy and it worked and now i cant take it and my pain is getting worse...help!!!

[kitty270]

Hi you need to be checked over in hospital to make sure all is ok. If scans show baby is fine explain the situation to specialist gyny team and ask for their advice. Ignore them saying it doesn't continue as there is no evidence to prove this! I'm afraid I do not know of the drug you mention. I'm in the UK and I was told I could take Zapain (cocodamols) for pain relief up until I give birth and use naproxen (anti inflammatories) up until the end of 2nd trimester only as beyond this it could affect the babies heart. I could use a tens machine throughout the pregnancy which was fantastic for pain relief and I highly recommend this. You can rent maternity tense machine's online for 7 weeks so you can try before you buy. I ended up buying mine as it was so good! You don't say if you have had any surgeries prior to pregnancy to remove the Endo deposits but, if you have, you could have adhesion pain. I've been through this. If you look at my previous posts I had severe PGP from 15 weeks and couldn't walk from 20 weeks. I needed weekly physio and used crutches to walk right up until the week before I gave birth. It's tough but you will get through it and have a healthy baby at the end. Just keep reminding yourself of that and it will be worth all the pain in the end. If you need any more advice just message me. Sending you hugs and hope for better days ahead. Congratulations try to enjoy this time although I know it's hard to do that.x

[Endomamma in reply to kitty270]

Hello, thank you so much for the reply ❤❤

It sounds like you have had a tough time too hun, its horrible isnt it!? All i want to do is be normal for my toddler and be capable to carry this baby without having to be medicated to eye balls!

Yes, i had a laparoscopy in 2017, found i had endo and adenomyosis and on my ovaries, they removed all, but within about 2 months the pain was back, has been since. I have battled with so many different doctors, and i just get fobbed off

I have wondered about using a tens machine, my pain is directly in my lower right stomach and pelvic area, so where do the put the sticky things etc? I am on codeine but the dose i need to take i cant when im on own with my toddler. So we have put him into full time nursery and i then can take my tablets, but they are not working anymore

I had PGP with my previous pregnancy, but not this early, i went physio but it didn't help, made me worse tbh. I am so worried I am going to be bed bound in weeks, i have high blood pressure now too and being tested for diabetes as my gestational diabetes test came back positive, i just had enough now xxx

Thank you again so much for taking the time to reply xxx

[kitty270 in reply to Endomamma]

Oh sweetheart I feel for you, I really do. I'm currently in bed at home in ovulation pain...know how you feel! Ye I didn't want to tell you that my Endo came back straight after birth, by the time my son was 6 months old I could no longer look after him due to pain and he was put into full time nursery. I had an operation that year when my son was 1 year 2 months old and... here I am again waiting for another op hopefully in the next 2 months when my son will be 3.5 yes old. This disease is really awful. It's life changing and definitely shortens the time frame we have to attempt to have children. I'm glad you are going for yourself be side it gives me hope that another industry possible. Anyway .....Tens machines are really easy all you need to remember is don't stick the pads on your spine or on a bone. They aren't dangerous but those placements just might hurt or make you feel funny. Other than that stick them on the painful bits. make sure the pads are roughly aninch apart. You need to leave a gap so the current can pass between them otherwise they won't work. But you could cover a greater area with a bigger gap. Example if whole of left side of pelvis hurting front and back, then on same lead stick 1 pad to your lower left side of you back and the other pad to lower left side on your belly ( same height). This would provide pain relief from front to back on left side. It won't hurt the baby at all even if you put them right on your belly. They are used in labour because they are risk free. Example I had ovary pain on both sides so I found best place was almost lengthways down my groin on both sides for one lead and I stuck the other pads on the 2nd lead on my back for my back pain either side of my spine. Endo pain is different in style to labour pain so don't follow the instruction on the box as this is only the placement for labour pain. Hope this helps. Also have you tried a chiropractor. My PGP was unresolved possibly due to the Endo and I have been seeing a chiropractor for a year and she is the only reason I can walk without crutches today. I know many use them in Pregnancy due to the widening of the pelvis and the stress this puts in the spine. I know I will be using mine during pregnancy if I am lucky enough to have another. Good luck sweetheart. You are not alone and I hope it all goes ok for you. Take care of you and the bump x

[kitty270 in reply to kitty270]

Not sure where the auto type gets "industry" from but funny reading it! ha ha 😂