Endometriosis after pregnancy: Hi everyone... - Endometriosis UK

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Endometriosis after pregnancy

Carebear92
Carebear92

Hi everyone,

I understand this is a sensitive topic for many so please ignore if this is the case.

I was wondering if anyone could share their experiences. Basic back story, I had my lap in January and had endo removed from my ovaries, uterosacral ligaments and between my uterus and bladder, along with an endocervical polyp. I found out I was pregnant 2 weeks later, having conceived before surgery, so I haven’t had a period since! I gave birth to my daughter in September and am breastfeeding, but I am still nervous about my cycle returning. What have other people’s experiences been? Have your symptoms been quite similar following pregnancy or better/worse? I’ve heard the first period postpartum is a doozy regardless, so what would it be like with endo?!

Thanks in advance!

20 Replies
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Congratulations 🥳sorry I can’t help with your query, but glad all has worked out for you from that perspective 😀

Thank you so much 🙂

Congratulations on your pregnancy I had a pregnancy which sadly ended in misscarrige it ended badly and made my endo worse.lost baby at 12 week .a little while later I got pregnant again I'm still pregnant 6 months in my final trimester and I'm planning on going on the coil after I'm keeping my fingers crossed it works .i think my endo will come back worse or the same have you considered any contraception ?

Carebear92
Carebear92 in reply to Afrohair

Oh I’m so sorry to hear about your miscarriage but congratulations on your rainbow baby 🥰 Had you already had surgery prior to your first pregnancy? I looked at the coil, but I will ideally want to try for another baby in the next few years so not sure I want to go down that route just in case it doesn’t work out well. I’ve been sceptical about hormonal contraception since being on the pill, I had awful side effects! But willing to try the mini pill to see if that helps? I’ve not really heard many experiences with it though, so fingers crossed!

Afrohair
Afrohair in reply to Carebear92

Hi love no I never had surgery but made radical diet and health changes to stop my pain it did stop within the year.the coil is good because your cycle stays the sand you just don't have a period I have had it before pregnancy in my past the coil is removed and everything starts up theirs no waiting for regular cycle you still ovulate unlike the pill it's halted.I had diagnosis privately by endo specialist without a lap!nodules were felt on examination inside my vagina and pelvis

Carebear92
Carebear92 in reply to Afrohair

Oh wow, that’s amazing! I’m so glad that worked for you so well! I think I might have to look more into the coil. Will see how the pill works initially and think about the coil for more long term if needed! Thanks so much for your help xxx

Afrohair
Afrohair in reply to Carebear92

Have a good think and do a bit of research before you decide xx

Carebear92
Carebear92 in reply to Afrohair

I will do 🙂 I have my postnatal check this week so will ask all the questions I can xxx

Hi, I had surgery 3 months before I fell pregnant with my daughter and my periods were so much more manageable after my surgery. Even my periods after she was born were absolutely fine no pain and the bleed itself was lighter than what I was used too. I was lucky as my surgery worked until she was 3 then the symptoms are back with avenge.

Carebear92
Carebear92 in reply to dolly26

That is really reassuring, thank you! I’m hoping for the same, obviously know it could come back but even a short period of relief would be amazing! I don’t even know if the surgery was successful yet, it’s very strange 😂 were you on any contraception?

dolly26
dolly26 in reply to Carebear92

I haven’t been on any contraception for 8 years until 2 months ago when I needed to take back some control until my next op.

Carebear92
Carebear92 in reply to dolly26

Definitely sounds positive then! Thank you so much for sharing your experience x

Congrats with your news i have had three children and everything grows back within 1 year of giving birth for me. I have always wondered if having 3 c-sections was the reason my endo grew back. But that is my situation. I hope that helps 🙏

Thank you! I guess 1 year is better than nothing 😒 haha! The waiting game is tough!

My first period after my son was fine, I breastfed him too so didn’t come back til he was 11 months old. After about 9 months I could feel the pain getting worse again so got referred back to the endo clinic. I was going to get the Mirena coil fitted but then found out I was expecting again (naturally after years of IVF!!) sadly this ended in a miscarriage at 16 weeks. I’ve since gone on progesterone only pill as I didn’t want to fall pregnant again and it has actually helped with endo pain too xx

Thank you for sharing this, it’s so. This is pretty much what I would expect to happen. Hoping BF will keep it away for as long as possible! Xxx

Breastfeeding is amazing 🥰🥰🥰 I managed to feed him until he was 21 months old, best experience ever xx

YES, I absolutely love it. We have had loads of issues up to now but I’m so determined to carry on, we are actually off to the lactation clinic this morning. 21 months is an amazing achievement, well done to you guys 😁😁 xxx

Congratulations on your baby! I’m currently still hoping to get pregnant before my surgery next year. Two friends of mine who have endo both said after pregnancy their symptoms were loads better. I know it might play into that dangerous myth that “pregnancy cures endo” but they suggested that pregnancy had sort of reset things for them. So I’m very hopeful I’ll experience this too! Xx

Thank you 🙂 absolutely, we all know it’s not a legitimate cure or even suggestion, but if it does improve symptoms that’s definitely a bonus! Good luck, hope you get your good news soon!! 😁 xxx

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