Ready to give up!!: My pain is past the... - Endometriosis UK

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Ready to give up!!

Xroisinellenx profile image
8 Replies

My pain is past the point I can take anymore. I’m in pain as soon as I wake and when I go to bed. I don’t understand how I can live like this anymore. I have been awake since half 4 in absolute agony!! I have taken 2 codine 1 naproxen and 2 ibuprofen and nothing is getting rid of the pain!! All I want to do is go back to sleep but I can’t get to sleep because of the pain!! Is all in my left side and I’m hot but then I’m cold. I have heat pads hot water bottle nothing is working. I have been signed off work for 3 weeks now. I just don’t see how much longer I can put up with this pain or keep being such a burden to my family

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Xroisinellenx
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8 Replies
introuble profile image
introuble

Honey!

Hugsxxx

I don’t have/diagnosed with endometriosis /PID yet but i had constant pain in my lower abdominal, i can understand your pain!

I couldn’t sleep well at night too.. and my anxiety really high.. like you sometimes i feeling hot, i open the ac and fan.. then i feeling cold have to close the ac and fan.. i sleep while holding the remote just to control the temperature of the room

Have you try sleeping in sitting position with bunch of pillows around you? Sometimes it helps

Xroisinellenx profile image
Xroisinellenx in reply tointrouble

I even tried lying on the bedroom floor at silly o’clock this morning, yesterday if I led down it felt like my left side was on fire so I ended up walking around the living room in circles again at silly o’clock. It’s literally the worst pain. Xx

introuble profile image
introuble in reply toXroisinellenx

You sound like me :( I’m sorry dear

tinkerbell971 profile image
tinkerbell971

Have you not got any stronger pain relief that you could take? X

Xroisinellenx profile image
Xroisinellenx in reply totinkerbell971

I have tramadol but I had already taken codine by then. I think I’m going to start taking tramadol at night before bed and pray that it keeps the pain away so I can sleep longer. X

tinkerbell971 profile image
tinkerbell971 in reply toXroisinellenx

Yeah I would take transformers instead of the codiene. For me codiene doesn’t really make much different but tramadol nocks me out. I would much rather be nocked out than in pain x

kitty270 profile image
kitty270

Rent a maternity tens machine. You can get them online. Make-up a fictional baby due date and rent one for 7 weeks. The pads and leads are completely new. The only used bit is the machine itself. Well worth it. Please try it. I thought it wouldn't help me and then when I was on my knees crying in pain I decided to get one and when I tried it on my worst day, I hated myself for waiting so long to try one. It saved me! Given it a go. Get a maternity one as it has a boost function for those extra shots when you need it and the pads are bigger to cover greater areas. Please try it and let me know how you get on. Also get a referral to a specialist BSGE centre. If your gyny won't refer you, refer yourself by insisting with your GP and then the specialist can sort better pain relief such as gabapentin etc...Sending you hugs and hope for better pain days ahead. Hang in there x

EndoBattle profile image
EndoBattle

So sorry to hear you are in so much pain. I have been there and totally understand. My Doctor has been amazing and actually gave me a lecture about not being a hero. I was on Tramadol and found it really good for pain when it stopped working my Doc put me on Longtec. It is addictive so not suitable for everyone but it definitely helped. I was also advised to try CBD oil which helped with pain and anxiety. Please speak to your Doctor and get something stronger. Chronic pain is horrible physically and mentally. It can be a very lonely battle

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