I’m back!

[AllSorts19]

So after 15 years, I’m back. I was on the old site with the chat room and forum. Till today, I thank my stars for Endometriosis U.K. after spending my teenage years in pain. I was eventually diagnosed after requesting a hysterectomy at 18 as the pain and bleeding was so bad. I had my first lap and my endo (do we still shorten it to this?) was on my nerves, hence why my pain was so bad. They could not laser and even though I also had rectal bleeding, no endo was seen in my bowels.

I was placed on depo injections to shrink the endo and that worked then moved on to the pill and allowed a period, once a year.

I came off all forms of contraception at around 28 and then discovered that my cycles were now haywire. I was then diagnosed with PCOS and now have Type 2 diabetes as a result.

Fast forward to early last year and I had started experiencing left ovary pain that increased in pain as my bladder or bowels filled up. Scans have shown that it’s not the PCOS. So after months of pain meds, I decided to take it all into my own hands. I did an STI check and nothing STI related but they did find puss on my upper cervical swab and was diagnosed with PID. I was put on antibiotics to see if that helped. Two days later, I developed the symptoms of thrush and three days after that I was in hospital with severe swelling in my pubic area and a clitoris the size of a grape.

Reg gynea said more than likely an infection as I had been scratching it non stop since using the thrush cream so home with painkillers. Now two weeks later the itching is bad and I have diagnosed myself with Vulvodynia and more than likely that my endo has started to make an appearance again. So I’m asking if you will welcome me back in during this difficult time and offer any advice that you can.

Thank you

[marti323]

Welcome back! So sorry that you went through all that during your teenager years and back again for related issues. We often hope that once everything is fixed that we can move in with our lives

But it’s nice to know that there will always be a supportive group of women experiencing that same issues that are ready to listen and support one another.

How are you feeling now? I had an infection about 6 months ago and dr had no idea that I had it. My left side ovary/tube felt like it was about to explode, it took about a few days in terrible pain before I went to the emergency room, when they just gave me narcotics. Two days after that a doctor thought my pain was from cyst bleeding into itself and operated on me. Found out that I had a tubo-ovarian abscess. They drained it and found out that I had stage four endo also. I was in antibiotics for 2 weeks.

5 months later in December i had another surgery in hopes that this other doctor could help me take out my left tube that was showing as a hematosalpinx on ultrasound and mri, as well as undoing all the adhesions. The dr was not able to undo the adhesions without most possibly giving me a bowel resection so he cut a partial part of the tube to hopefully help drain the tube. That was all he could do. Now it’s been about 3 weeks. I have my second period after surgery, and I have still been experiencing the pain on my left side. It’s really upsetting.

I hope your doctors find a way to help with symptoms. They sound really really intense. Are you still on antibiotics? Did it help? Your pain sounds like mine, I have more pain when I need to have bowel

movements and during it. When I need to pee, the pain is also more apparent. I also find that after I eat, it feels better. Mine is a strange heavy dull pain unlike my period pains. My back left side also hurts a lot. And I have a lot of pressure in my rectum but after pooing 4-6 times a day, I don’t have anything else to poo, but the pressure remains. I get a few days relief in a month where I feel nothing and when my period comes, the pain starts all over again. I plan on having another surgery with a specialist next.

Anyway I hope you are okay!