How do you deal with your pain? Working? Help me.

[AltsweetCX]

I'm a 24yr with Endo, was stage 4 when I went for my surgery, now have Mirena IUD in. I also take A long lasting pain killer (doesn't do much honestly) and when things get really bad I have to take codeine (knocks me out silly). I have the problem that I'm allergic go paracetamol, which makes my options limited. I wondered what options people use for pain or how to cope with it? Or continue working? I'm Struggling with keeping my job with this pain!

[AltsweetCX]

I was treated on the NHS in the UK by a Endo specialist, I see her every 6 or so months.

And they got as much of the Endo out as possible to me knowledge.

[AltsweetCX]

Wales, I wasn't aware there were specialised Endo clinics to be honest!

[Myfanwy21 in reply to AltsweetCX]

Hello, did you have your op in the Heath in Cardiff? There are 3 endo specialists there and they're the only accredited specialists in Wales. Hope you got to see one of them!

[k77a in reply to Myfanwy21]

What are the name of the specialist in Wales? Please

[livvi_livvi]

I always find taking my wheat bag or Tens machine to work helps. Keep on top of pain killers throughout. I have a very supportive and understanding employer where I currently work reduced hours due to my pain. I work in a call centre as a supervisor so have to take frequent breaks and walk around.

Have you spoken to your employer?

Xxx

[AltsweetCX in reply to livvi_livvi]

Yes I've spoke to my employer and they are really supportive but only so much then can do.

[SarahMia227]

I use a hot water bottle and peppermint tea for pain management/bloating (one and the same for me)! I also used to take a walk when the pain got bad. I was very lucky that I had a supportive employer (I'm using the past tense because I left my job in June 2018 unrelated to endo to go back to university), who let me go home when I needed and change my hours - so I still got the work done, but if I was having a flare up I could go home, calm it down and then finish later from home. I understand how hard it can be though - after I left my job, I did an internship in the city and I kept my endo hidden with peppermint tea, painkillers and stick on heat patches, which kept it at bay. Not sure it was a long term solution though! xx

[AltsweetCX in reply to SarahMia227]

Thank you for the reply! I'm defiantly going to look into peppermint tea!

Even just to help the flare ups!