Anyone else get this?

[Becca82]

Hi everyone,

Hope you are all as okay as can be.

I have some symptoms and am wondering if anyone can shed any light on them as the gynae just says “it’s hormones and to be expected” - which may well be the case!

Once a month (normally 5-7 days before my period) I have an awful night. I wake up dizzy like the room is spinning, I feel sick, I’m boiling hot, my right ovary feels like it’s being twisted, I have a headache all across my forehead and open my bowels throughout the night over and over again. I probably get two hours sleep and the next day feel exhausted with a terrible headache. Is this a surge in hormones?!

Thanks

Becca

[Thecraftyadder]

I would have episodes similar to this usually on day 2 of my period every few months. Wake up feeling awful and often hot, the worse pain imaginable in my right side. Episodes of alternating bowel movements and vomiting (I was told my a nice on call doctor this can be the bodies response to severe pain). Eventually I'd go back to sleep but the next few days be wiped out and feel like I'd been kicked in the stomach. I was told everything from 'everyone gets this' , 'you had an ovarian cyst rupture' (what 4 times in 13mths???!!!) to 'its your appendix' . My first bad spell was in my mid twenties when it went on for 4 hours. Finally this year at 37 I was diagnosed with endometriosis. I paid for a private consultation with an endometriosis specialist who latter did surgery. Mine was missed by several general gynecologist (one told me it was due to my age). Could you arrange to see an endometriosis and pelvic pain specialist privately for advice on the 'normality' of this? Because it doesn't sound normal to me...

[marti323]

Sounds like it could be endometriosis related. But it certainly sounds like the pattern here is that these episodes are tied to your cycles. See an endometriosis specialist. Excision specialists are even better. If doctors try to tell you that it’s nothing, keep going to other doctors until one will listen. Don’t go undiagnosed for years and waste years because there are sadly a ton of unknowedgable doctors out there that can delay your journey to better health.