Anyone else feel like they're going mad? - Endometriosis UK

Endometriosis UK

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Anyone else feel like they're going mad?

Endosucks1 profile image
5 Replies

There is a limited knowledge about hormones and how imbalances might either be causing Endo or are caused by Endo, but does anyone else suffer extreme irritability - one minute feeling happy and the next wanting to pull your hair out?

For me this often coincides with my time of ovulation and pelvic pain, and pain having bowel movements and sex etc, but sometimes it feels like I am yo-yoing more than I am stable. This is hard on my husband who is a saint, and I always feel guilty but don't know what to do.

It makes me feel extremely unsociable and lacking in confidence when I have an episode of anxiety, and, since having major surgery 2 years ago to diagnose and remove the advanced endo, it has become the most debilitating part of living with the condition. My consultant has prescribed 10mg of Provera - 1 tablet per night and although this has done wonders for my pelvic pain, I am left with pretty much all the other symptoms. Hearing about similar experiences would help!

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Endosucks1
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5 Replies

Yes, this is exactly like me since I've had my Mirena! I'm having it removed (thank goodness) on Thursday. I don't think I could cope any longer with it, I feel like it's changed me so much emotionally. I think endo is tough enough to deal with without the emotional rollercoaster too! 🎢 😮😳🙃🙂😤😡 xxx

skylar0 profile image
skylar0

Yes! I have terrible moods exactly the same as you describe around the time of ovulation pain and then the day before period. I just have some me time around then and make a little den in the bedroom and tell people I am unplugging until further notice. It works quite well as before I would just try to carry on and would end up arguing with a lot of people. I suppose easier for me as I am self employed. I did mention it to the Drs before but they just offered me antidepressants....

kayjayne profile image
kayjayne

My moods are all over the place, this condition has ruined my life as all the different hormones I keep getting put on just mess with my emotions

NW248 profile image
NW248

I read an article in a very scientific book about endo which said that high levels of a substance called IL-6 were found in women with endo. So I then looked up information about it. It seems to be the body's response to inflammation, (so it may be that it is responding the the endo tissue), it is also found in high levels in people with manic depression (bi-polar) and schizophrenia. It affects the connectivity between the neurons in your brain. Which essentially means that you can't think straight, you can't join up your thought process in ways that should be joined and join things that shouldn't (irrational thoughts, moods changing dramatically etc.)

So basically it is like it is a bit like getting your drink spiked except that you body is doing the spiking to itself. The reproductive type hormones won't help the situation either.

pugmammy profile image
pugmammy

I was taking 20mg of provera for a few months and i was exactlly the same. Bleeding got better pain virtually went and litterally if i missed a pill id suffer the next day. So they were working but the side effects were herrendous. Crying daily. screaming at my little girl over nothing i never shout.felt very anxious and lonely definatley deperessed. And alough the pain came back big time i felt human again after a week of no provera. Im currently trying mirena again 1st time lasted 10months had loads of bleeding and severe pains. This time its been around 4weeks. Bleeding has stopped but pain niggles every day.mostly my bum n legs. Will keep it up but ive asked my husband and friends to keep eye on my moods it was scary before. Xx

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