Miscarriage Worries: Hi all, I found that I... - Endometriosis UK

Endometriosis UK

72,903 members53,260 posts

Miscarriage Worries

jadeyandcoke profile image
5 Replies

Hi all,

I found that I was unexpectedly pregnant last week. Husband and I weren’t trying but didn’t use contraception one night so here we are! I’m thrilled with the news as was told that we would struggled to conceive naturally.

I was diagnosed with Endo in 2011 and have had 3 laps to treat 3 endometriomas and remove endometriosis - the last surgery being in spring 2014. I also had 2 courses of Gonapeptyl post-op in 2012 and 2013 to reset everything. Haven’t had any issues since; had my Mirena removed in 2016 as it was causing me long bleeds but declined any other hormonal contraceptives as I wanted to give my body a break. Periods have been light ever since and have had the odd painful period.

I was diagnosed in May with a 2cm endometrioma following some bowel symptoms. I was re-scanned in Sept and the size hadn’t changed. Gynae did an internal exam also but said he couldn’t feel any nodules in my vaginal passage so felt I wasn’t flaring up and was reluctant to remove the endometrioma surgically due to size and the fact I was having barely any symptoms.

I’m currently 5+3 along in my pregnancy but am worried that I am at higher risk of miscarriage due to endometriosis even though everything has settled down and I’m largely symptom free and have been for 4 years.

Looking for some reassurance really! Trying to take things day by day but feels like a lifetime until I’ll get to have a scan to check the baby.

Thanks x

Written by
jadeyandcoke profile image
jadeyandcoke
To view profiles and participate in discussions please or .
Read more about...
5 Replies
ccsmith profile image
ccsmith

I unexpectedly fell pregnant in 2010 after being told I can’t have IVF due to stage 4/5 endo and large endometrioma. It was tough at the start as I had a lot of pain and then severe nausea. I went to the early pregnancy unit at 6 weeks and then weekly until 9 weeks due to my issues and they were so lovely & reassuring.

Please try to relax & possibly enjoy the possibility of a new life. Once Christmas has settled give them a call & I’m sure they will book you in.

Best wishes & I have everything 🤞🏻 that you get a beautiful baby at the end.

First of all congratulations lovely news 🙂

I also have endometriosis, unsure of my stage but did have 3 laps last by an endo specialist within 13 months. I had 2 after my chemical pregnancy last year.

It took us nearly 6 years of trying to find the issue- endometriosis was eventually diagnosed.

I’m 18 weeks pregnant following my last surgery in July. I could’ve written this post myself in the early weeks. It was tough the early weeks. Time went so slowly but is flying now!

The best advice I can give is take it one day at a time- “ today I am pregnant, tomorrow I might not be but today I am & I will be happy . “ It worked well for me ( until I spotted but scans showed all was fine with baby & reassured me)

I’m still nervous now but better than I was. Having scans & hearing baby’s heartbeat really help.

Just remember more pregnancies make it then don’t.

All the best with your pregnancy. ❤️❤️❤️ xoxo

jadeyandcoke profile image
jadeyandcoke

Just wanted to update and let you know that my pregnancy continued successfully and I had my little boy, Kit, at the start of September.

Feel blessed that I was able to have him despite my long history with endometriosis. Particularly grateful to my surgeon, whom I feel really did wonders to get the disease to a much more manageable stage.

Afrohair profile image
Afrohair in reply tojadeyandcoke

Such good to read lots of ya worry about conception congratulations x

ccsmith profile image
ccsmith in reply tojadeyandcoke

Congratulations what a wonderful outcome. I must admit I enjoy every second with my miracle and she’s now 8.

Enjoy your miracle I’m sure he’s precious in every way c

Not what you're looking for?

You may also like...

Positive story

Hi! I just wanted to share some positivity and hope for anyone struggling. I’ve always had bad...
Bthree profile image

Palpitations with endo possible symptom?

Hi so this may seem a bit strange but wanted to know if any one has had similar symptoms to me. So...
butterfliez profile image

Laproscopy and blood tests?

Hi I’m still in the process of trying to get diagnosed and trying to get gynaecologists to take me...
Amywoodx profile image

Possible Endo without too much pain?

Hi all, After TTC for a long time and spotting a week before my period every month, I had a scan...

Endometriosis and miscarriage

Hello, Have any of you ladies been lucky enough to fall pregnant with severe endometriosis? I was...
miss_marple profile image

Moderation team

See all

Top community tags

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.