On Zoladex & Tibolone before hysterectomy. - Endometriosis UK

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On Zoladex & Tibolone before hysterectomy.

EndofEndo18 profile image
4 Replies

What are your experiences after hysterectomy? Did it ease things? Did you have ovaries removed? HRT?

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EndofEndo18
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Hi Ladies we all are different my experience has been a big regret as I had precancerous cells they removed everything when I had hysterectomy but life hasn’t been the same since had FM for over 15 years now just about cope with the pain but wish I had never had hysterectomy as I always having bladder infection treatment antibiotics then few days following I get thrush so then thrush meds for a week feels like life is just one big bloody pain I take a lot off medication now got meds for diabetic and satins

Hopefully not many go through this killed my sex life !

But now doctors are telling me four years later I need hrt but I went on it after hysterectomy but that’s given my pigmentations off the skin doctor has given me the gel for hormones can’t get it till tomorrow chemist have to order it anybody out there who uses this method of Hrt

kristib12 profile image
kristib12 in reply to

Hi there, you probably have looked into all your options but saw on this article towards the bottom it mentions a low dose vaginal cream containing estrogen may help?

lifeafterhysterectomy.com/b...

My mom had a hysterectomy and said she had her bladder 'pinned up' during the process and had no problems whereas her friend who didn't know about that and the gyno didn't pin it up had major problems with incontinence and had to have a second surgery.

I'm awaiting my appointment to possibly schedule a hysterectomy and will be asking about this.

EndofEndo18 profile image
EndofEndo18 in reply to kristib12

That’s great info. I’ll definitely keep this in mind and discuss this with the consultant.

EndofEndo18 profile image
EndofEndo18 in reply to

Thank you for your reply. I’ve heard a few others speak about recurrent bladder infections. It’s such a big procedure, and I don’t feel enough time is spent with women to fully understand their needs and to fully explain chance of risks. I’m still debating whether it’s best for me, but I’m desperate to be rid of this too.

Right now I’m having stabbing pains in my right ovary which has 2 cysts every time I bend over. I’m on day 6 of zoladex and Tibolone but not sure if this will just settle. Painkillers don’t stop the sharper pains. I feel there’s no point going to my GP because they seem to have little knowledge of endo. Family don’t understand. For the first time I feel a bit alone.

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