Still in pain 😥: After being diagnosed... - Endometriosis UK

Endometriosis UK

72,903 members•53,260 posts

Still in pain 😥

Clairabelle73 profile image
•5 Replies

After being diagnosed with endometriosis in 2012 after having painful periods most of my life I had a laparoscopy

I was pain free for 12 months then it all came back so was referred back to gyne

In 2015 I had a hysterectomy but the consultant would not remove my ovaries I did beg her to but she told me that because I was 42 I was too young I got over my operation and I was pain free again but it never lasts long

Although I don’t have periods anymore I had bad pain 2 weeks of the month and they got worse so went back again

I went for a mri scan and I now have stage 4 endo scar tissue from past surgery and I’m now having prostap injections for 4 months to shut down my ovaries to see if it gets rid of this horrible period pain and migraines

Just thought I’d write a bit about my experience maybe it may help others thanks for reading Clair x

Written by
Clairabelle73 profile image
Clairabelle73
To view profiles and participate in discussions please or .
Read more about...
5 Replies
•
emlouben profile image
emlouben

I am the same you are not alone , I too have had multiple laps and a hysterectomy leaving my ovaries in and still have pain 2 out of 4 weeks of the month. Maybe I should ask for and mri

Clairabelle73 profile image
Clairabelle73• in reply toemlouben

Hi the mri just showed where the adhesions and scar tissue where and I have one ovary stuck on the left side close to my bowel so that’s why he put me on the prostap injection to see if they work but they don’t 😥 it’s horrible to go through

Dakrav profile image
Dakrav• in reply toClairabelle73

Did the doc remove the uterous? Then why not ovary after hysterectomy? That’s strange. I can’t really understand that.

Clairabelle73 profile image
Clairabelle73• in reply toDakrav

They left the ovaries because of the hormones you would go straight Into menopause and she said I was too young at 42 to go through that although I know women younger than me that have been through it

I wanted her to remove them but she wouldn’t everything else was removed now I’m still in pain

Dakrav profile image
Dakrav• in reply toClairabelle73

I am 44 and have my uterus and left ovary left. I had laparoscopy 10+ years ago. It was because my right ovary was all chocolatey and ruined. I found out because I kept getting attacks on my lower right abdomen and right right side. So the doc told me to get an ultra sound done and that’s how they saw I had Endo. With the right ovary gone and appendix. Why don’t you try merina IUD. I have had that for 5+ years and I have a better life now. May be that will help you.

Not what you're looking for?

You may also like...

Anyone suffering pain with Tibolone?

Been on Prostrap for 4 months (3 single doses and more recently a 3 month dose). Only just been...
RuthieY profile image
•

Still in pain after laparoscopy

Hello! I'm a new poster but have been reading the threads here for a while and have found it really...
Daisy_Steiner profile image
•

Still painful and still no answers.

Ladies, I really need your help right now. I left my doctor's office in tears today and I have no...
jessicaanne23 profile image
•

Still In constant pain 1 week on

Hello all I was just looking to hear about your own stories of having a laparoscopy and how you...
Lanny1811 profile image
•

Sciatica and endometriosis? Also, what is that lump?!

Hello everyone! This is going to be a long post, so apologies for that! I'm after some information...
Tealandgold profile image
•

Moderation team

See all

Top community tags

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.