Anyone suffering pain with Tibolone? - Endometriosis UK

Endometriosis UK

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Anyone suffering pain with Tibolone?

RuthieY profile image
5 Replies

Been on Prostrap for 4 months (3 single doses and more recently a 3 month dose). Only just been prescrbed the add back Tibolone. Was pain free after first month of Prostrap but with Tibolone I am now having pelvic pain. Doctor said Tibolone would help prevent osteoporosis etc but eostrogen would not affect ovaries having it as an add back. Anyone else had these symptons? It's very painful today and I am miserable having been pain free for 3 months!

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RuthieY profile image
RuthieY
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littlestar profile image
littlestar

yes i had those symptoms on deceptyl.Also banging headaches and my hair fell out once i stopped the tibolone it stopped.

anotherteresa profile image
anotherteresa

I had unexplained joint pain but did not know if it was from my Decapeptyl injection or my Tibolone. Mine did wear off after a couple of months. Now I just get the odd ache and joints are stiff in the morning.

Cloudyrain profile image
Cloudyrain

I was on Prostap and tibilone at the same time so never knew what to attribute to what, but had mild aches (compared to what I was used to) and increased sweats/mood changes. Massive improvement in symptoms though so it was worth it for me. Hope you feel better soon and its just an adjustment period (or unrelated like a virus or something) x

Emmashead profile image
Emmashead

Yep i did all my endo symptoms return wen i took HRT so yes its down to that sorry it hasnt helped u xx

RuthieY profile image
RuthieY

Hi, Did you continue with Prostrap without HRT?

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