Endo in Diaphram?

[Hd123]

Hi everyone!

I had a lap in June during wich endo was discovered and removed from my pouch of douglas, cervix and bowels.

I had the coil put in. With no relief of symptoms I am now also on Cerazette.

However I am experiencing increasing symptoms, including excruciating shoulder pain in my right shoulder.

My question is, do they always check your Diaphram when doing the lap and could endo have been missed? And if not, what is causing this awful pain?

Thanks X

[Bdgjdjd]

When do you get this kind of pain daily or during period time ?

[GrittyReads]

It might depend who did the Lap. If it was an ordinary gynae, it's possible that things were missed … but if it was done at a specialist Endo Centre, (BSGE) Centre in the UK, this is less likely. [NB - Of course it may depend on where you are in the world].

Did you have an exploratory lap beforehand? I believe it is now suggested/expected/official??? in the UK, that ordinary (??) Gynaes should not be removing endo in 'difficult' places, such as the Pouch of Douglas and on the diaphragm; but that such case should be referred to specialist endo clinics (BSGE Centres).

I would talk to the advisors at 'Endo UK'. I think one of the biggest problems for women, in the UK, is that they are not fully advised of their options, and often end up having removals of endo, at laps that should maybe done by Endo specialist. On the other hand, the waiting list at the Endo Centres seems to be getting ever longer … according to other comments made on here. If you are in the UK, I would go back to your GP and ask about the official protocol that he has (or should have) for referring women to Endo Centres, rather than to general gynae centres. But do please, contact the 'Endo UK' advisors.

[Hd123 in reply to GrittyReads]

Hi! Thanks for your reply.

My surgery was done by a specialist centre. I have an app with the consultant next week so I will speak to him then and see what he suggests.

I will also talk to the EndoUk advisors before the app, thats a really good idea and something I have not done before.

I hope you are well.

X

[LolaLo3]

Hey I’m had my diagnostic lap in April mines wasn’t a endo specialist that done my op , I was diagnosed stage 4 also on my diaphragm and liver but he did say to me afterwords that because mines was so severe when they went in they then looked all over and that how I was diagnosed with it on diaphragm and liver.. next app I would defo mention this as that is a classic side affect to endo on diaphragm xxx

[Hd123 in reply to LolaLo3]

Hi!

Sorry to hear that.

I think I will speak to my consultant at my next appointment and raise the concern with him.

At times the shoulder pain is worse than the pain anywhere else!

I hope you are doing okay.

X