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Endometriosis UK
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Sciatic pain

Hi ladies,

I was wondering if anyone had a similar experience or has any advice. I’m waiting for my second lap. Before I had my first one I would often get the sensation that I couldn’t put my foot flat on the ground before I had a severe attack of endo pain that would make me lose consciousness. Thankfully this time the pain is more like a 6 than a 10, bad enough to not be at work but no screaming or fainting - but the weird sciatic sensation remains the same. Is this normal/common? My feet tingle and I can’t put them flat without effort, I have pain from my bum all the way down my legs and I have pain in my POD area and ovaries.

Any top tips for relieving this pain? Naproxen isn’t touching it and I’m trying to reserve codeine for emergencies only - but I’m in constant pain and I’m having to walk with a stick so I need to do something.

Any help will be gratefully received! Thank you xx

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I have shooting pains on my thighs down to my knees that is really weird and I’ve heard a lot of people mention similar things x

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Thanks for sharing your experience, I wonder why this happens?! I’m glad to hear that it’s a common symptom though, makes me feel less alone x

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Hi,

I was getting this almost constantly a while back, now just before I’m due on.. (although I don’t have a period with the coil, just all the shitty symptoms)

It was all on my left side. I got bad pelvic pain, I’d get hip, lower back, groin, bum and leg pains. Then dull aches in one area and shooting pains in another.

I’m not yet diagnosed but I think endo is effecting my sciatic nerve somehow.

I really feel for you. It sucks!

Hope you find some answers xx

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Thanks for the support and for sharing your experience with me. It’s helpful to know that I’m not alone in these symptoms and I’m not going mad! I hope you get some answers soon! X

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Hi Ruby!

I'm currently awaiting my first diagnostic lap and like yourself, also have sciatic nerve pain.

I have found Pregablin to be a great help, although it can make you feel a bit drowsy initially, so the dose needs to be titrated.

I hope this may becomean option for you and that you find some relief soon.

Goodness knows what causes it though!

Big hugs, Manda

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Hi Manda!

Thanks so much for your reply and for letting me know what you find helpful. I haven’t heard of Pregablin before but I have an appointment with my GP soon about managing my pain so I will definitely mention this to them :)

I wish you all the best with your lap! Xx

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Hi, I have the same. Like electric running down both legs and pins and needles in the feet. Terrible pain in low back and throbbing period pain(which is weird as I have had total hysterectomy many years ago). Waiting to go to BSGE centre in Liverpool. I take pregabalin too which is for nerve endings, so worn out with all this. Just gotta put your feet up and rest. Wishing you well. X

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Thanks Gwen, that sounds very familiar and exhausting! I hope you get some answers from BSGE centre. Thanks for letting me know you’re also taking Pregabalin I will definitely raise this with my GP as a possible solution. Take good care xx

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Don’t think the drs are keen on pregabalin as he is addictive and expensive. They always think of their budgets!! It did help in the beginning, been on them for several years so not so effective now. Good luck. Take care xx

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